1. < Esophageal Cancer
Profile picture for ajbambe

Adenocarcinoma, stage 4, local metastatic.

Posted by ajbambe @ajbambe, Oct 24, 2023

Hello! My dad is currently undergoing treatment for his recently diagnosed Adenocarcinoma, stage 4, local metastatic esophageal cancer(July 14th)He recently underwent 5 weeks of daily proton beam therapy and 5 weekly chemo doses. Last doses Oct. 5th. Lots of issues with nausea and vomiting, despite round the clock anti emetics. Receiving intermittent IVF in Rochester for severe dehydration and malnutrition.
PET scan on 10.26.23 with a possible Ivor Lewis Technique esophagectomy scheduled for 11.06.23 ( assuming no cancer detected on PET scan).
Anyone have any advice for surgery?

Interested in more discussions like this? Go to the Esophageal Cancer Support Group.

Profile picture for rlrlavender
rlrlavender | @rlrlavender | Nov 14, 2023
In reply to @aimeevuk "So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years..." + (show)
Profile picture for aimeevuk @aimeevuk

So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years as a respiratory therapist, so she has seen much and I'm having difficulty keeping her optimistic. What medical facility are you working with?

Jump to this post

Ohio state James cancer hospital in Columbus Ohio

REPLY
Profile picture for rlrlavender
rlrlavender | @rlrlavender | Jan 5 10:27pm
In reply to @aimeevuk "So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years..." + (show)
Profile picture for aimeevuk @aimeevuk

So encouraging. Thank you Rachel! My sister has been in the medical field for 40 years as a respiratory therapist, so she has seen much and I'm having difficulty keeping her optimistic. What medical facility are you working with?

Jump to this post

@aimeevuk Wexner Medical Center at The Ohio State University

REPLY
Profile picture for lionsfan
lionsfan | @lionsfan | Jan 7 8:44am

Dr. Steven Wigle, Mayo Clinic Rochester

REPLY
Profile picture for jimmyd4
jimmyd4 | @jimmyd4 | 2 days ago
In reply to @rlrlavender "Aimeeuvk, Very sorry to hear about your sister. I was diagnosed with stage 4 February 2021...." + (show)
Profile picture for rlrlavender @rlrlavender

Aimeeuvk,
Very sorry to hear about your sister. I was diagnosed with stage 4 February 2021. It metastasized to lung, liver and abdominal lymph nodes. I’ve received chemo and immunotherapy and am currently pausing treatment as the original tumor was gone after about 6 months of treatment and the lungs are clear and the liver thing may have just been an artifact, not cancer. The abdominal lymph nodes have greatly reduced but they are monitoring as scans have been stable for a year. There are many stage 4s that are outliving old statistics, so ignore the statistics. Was there any bio marker testing? I know a couple stage 4s that are still around even 5 and 7 years after diagnosis. Immunotherapy has been a game changer for this diagnosis. Wish your sister all the best in this journey.
Rachel

Jump to this post

@rlrlavender well i i am in remission from stage 4 esophageal cancer after being diagnosed with it in 2012 i had 6 weeks of radiation twice a day and they were giving me my radiation like i hsd stage 4 lung cancer in both lungs then 4 weeks of chemo everyday then they removed my esophagus nearly all of my stomach they were supposed to make one out of what was left of my stomach and some of my small intestines my gall bladder the majority of my lymp knodes in my chest and abdomen I weighed 187 pounds when diagnosed lost all the way down to 103 and i am 6ft 2inches so hang in their things will get better except the taste of food

REPLY
View MoreView Less
Please sign in or register to post a reply.