Adenocarcinoma NSC Lung Cancer Stage 3. Advice? Success stories?

Pixie dust
My husband had 4 rounds of Carboplatin, Alimtz, and Keytruda. The Keytruda may have given him inflamation in his lungs so he was put on heavy doses of steroids, and round 5 he had only Alimtz. Then another CT, still indicating inflamation. was due for round 6 today but due to continued inflamation, no treatment, advised to contact his pulmonologist before they proceed with further treatment.

Find a better Oncologist. I'm lucky that my superpower appears to be picking really great doctors. Keep looking. They're out there. After my brain surgery to remove my metastatic lung cancer, I went to MD Anderson for a second opinion. They told me no need to come back. My doctors did everything they would have done, and I should listen to them. I do! My Oncologist knows I don't want to know the odds, and he rarely mentions the numbers. Still, it's my choice to ignore them. I plan to live forever, or die trying!

I've had Stage 4 metastatic lung cancer for over 2 years now. Mine metastasized to a part of my brain that controls nerves on the right side of my body and coordination between the two sides. I practice the Hans Solo approach, "Never tell me the odds!" Sure, my Oncologist sometimes tells me the numbers, but I don't focus on them. I don't care what the survival rate is, I'll set the upper end of the curve. Just watch me! Regular physical therapy has, and still does, help my body deal with the changes. I work full time, walk my dog, and still enjoy judging and eating BBQ as well as doing yard work. Find someone who uses a number of modalities to address biomechanical dysfunction. Some PTs use the same approach for everything. Avoid those.

Day three after chemo and just very fatigued and emotional. I think the hardest part is the emotional stress.

My husband also has stage IV meaning it metastasized to his other lung, in other words both lungs. PetScan showed no other spreading, this was done in Sept. He has just completed 4 rounds of chemo & immunotherapy. Very few side effects, other than lots of sleep.

Amen!

I understand why the doctors stage cancer but it’s not something we should think about. I’ve been treated twice for stage 1 lung cancer in the last two years and felt I was in a reasonable good place. A few days before my treatment the surgeon kept saying that another nodule is going to turn malignant so I said take it out but he said no without explanation. I could reasonably guess my lungs are not in good shape with the added problem of COPD. So if I have more reoccurrences I won’t get surgery anymore. What really upsets me is that he said we’re trying to get you to 73, I’m turning 72 soon. People have consistently shown that these numbers are not definitive, look how many people live well past their projections. All I can add to this is that his comments had a very bad effect on me, it’s in God’s hands amen.

Thanks for the tips on coping. Today is the first day after first chemo treatment- not the worst but not the best. Been pretty emotional all day - looking at the laundry that needs to be done, feeling guilty about not cooking dinner, etc etc and feeling bad that my husband who has a pretty intense job has to deal with all this too. Appetite good today, forcing myself to drink as much as I can, but feeling a little shaky and trembling off and on. I just feel like I have nothing to look forward to each day… I’m hoping to find some joy again, somewhere somehow. I know that I need to let go of the guilt for not feeling good or being productive. Maybe I just need to be more accepting of days like this and expect it . Like the idea of turning on old movies I’ve seen before so I don’t have to feel like I need to stay awake to not miss something.
Love to all who are going through this ❤️

Just what I was told.

After awhile I learned to embrace the treatment effects. They didn’t last that long. Keep a diary or a checklist and you may start seeing a pattern. The steroids made me feel energized at first and then I knew I’d be spending a few days on the couch barely eating. So I had my cream of wheat and bananas; soup and crackers at the ready. Easy reading ( books I’d already read and loved so it would be easy to focus), and my favorite movies so if I fell asleep I wouldn’t miss anything. I got rid of any guilt I might feel for just staying low for a few days. Then gradually work myself out of it again until I was back to normal. ( Knowing I was going to have to do it all over again I three weeks)