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@katiesue

After awhile I learned to embrace the treatment effects. They didn’t last that long. Keep a diary or a checklist and you may start seeing a pattern. The steroids made me feel energized at first and then I knew I’d be spending a few days on the couch barely eating. So I had my cream of wheat and bananas; soup and crackers at the ready. Easy reading ( books I’d already read and loved so it would be easy to focus), and my favorite movies so if I fell asleep I wouldn’t miss anything. I got rid of any guilt I might feel for just staying low for a few days. Then gradually work myself out of it again until I was back to normal. ( Knowing I was going to have to do it all over again I three weeks)

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Thanks for the tips on coping. Today is the first day after first chemo treatment- not the worst but not the best. Been pretty emotional all day - looking at the laundry that needs to be done, feeling guilty about not cooking dinner, etc etc and feeling bad that my husband who has a pretty intense job has to deal with all this too. Appetite good today, forcing myself to drink as much as I can, but feeling a little shaky and trembling off and on. I just feel like I have nothing to look forward to each day… I’m hoping to find some joy again, somewhere somehow. I know that I need to let go of the guilt for not feeling good or being productive. Maybe I just need to be more accepting of days like this and expect it . Like the idea of turning on old movies I’ve seen before so I don’t have to feel like I need to stay awake to not miss something.
Love to all who are going through this ❤️

Hello Katiesue,
I go through the same challenging days after the treatment. It’s hard, isn’t it? I dislike being so sick and weak. My heart pounds just walking outside to sit in a chair. Fortunately it’s only about three days and then it lifts. I’ve gone through four rounds of a standard therapy along with keytruda following three rounds in a clinical trial. Next week I have the scans at Mayo to determine what next for treatments. I am hopeful no more carboplatin.