Adenocarcinoma NSC Lung Cancer Stage 3. Advice? Success stories?

Posted by detroitmom23 @detroitmom23, Feb 7, 2023

I recently found out that I have stage 3 adenocarcinoma NSCLC with mass in lung and spread to lymph nodes in neck, they want to do four rounds of chemo and if shrunk enough possibly radiation afterwards. I have asked them not to give me a prognosis because my fragile mind can’t handle it.
My first chemo treatment is tomorrow and I’m a nervous wreck. Any advice on getting through it?
Any success stories would be SO welcome right now.

Interested in more discussions like this? Go to the Lung Cancer Support Group.

Thank you. I appreciate that. 😊

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@soupycampbell

Thanks for your reply. I was assuming since you said you were close to the Washington border as well that you were close to me! It would have been nice. Yes, I hear you and I guess we both just have to enjoy life while we’re fairly healthy to enjoy it and see what the future holds. Please keep in touch and I will do the same. Like I said I’ll know more when they do another scan. I still need to ask how big the new one is on my lower back. It’s not that bad as yet just some lower back pain which I just take an Aleve.
Take care and prayers sent your way.

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@soupycampbell, I can help. I removed the pictures that you didn’t intend to post. 🙂

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In reply to @bmiller711 "How is he doing?" + (show)
@bmiller711

How is he doing?

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@bmiller711, how are you doing? Do you have lung cancer that metasticized?

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@frouke

I know we’re neighbours but I meant we share a continent lol.. I would definitely go to the Mayo clinic but I don’t have medical insurance…it would be a costly thing if you also need accommodations and so on, not to mention that I’m a poor traveller…I realized very quickly when I joined this group that things were very different for me in my medical care versus what I read here…they have private clinics in Canada but the existing medical care is outdated and unattainable for people with a more limited income. It’s far from perfect what they have but I heard that they are working on a health plan that also going to be more attainable for everyone and will be based on income..this is hopeful for people like me. I shall look forward to hearing from you when you’re able and share what you are going through..I like the pictures, everyone is so happy and enjoying where they are…thanks again and all the best wishes for you amen

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Hi. Those pics most of which I never intended to send but could no way delete!! I was going to send you the one of the sunset at a lovely restaurant on the water at Solana Beach. The pic of the hot tub is my daughter and granddaughter. The other group pics are when she took her staff out and some pic of tv show?? So embarrassing, sorry about that. I’ve been very lucky as my daughter has been taking me with her on lots of her travelling now which is great as she has to travel a lot. I do have a dog and take her when I can. She has to go to Hawaii the end of Oct but hard to take the dog there so I may stay home. I absolutely love it in California though.
I’m in British Columbia and have been looked after by the system very quickly once things were found. Too bad my previous Dr decided the very rare Melanoma on my head was a cyst so was there for a year before I went to someone else. So after that they did the PET scan to make sure there wasn’t anything else and of course it lit up in a few places. So upper and lower lung, something small on the kidney and lately the one in my lower back. I’m just happy it never went to the brain. It is hard to get much info from the specialists but I just told one that we were going to have “a come to Jesus moment” and I asked for answers. I’m strictly on pension so everything has been on our medical system. The radiation team are fantastic and treat you like royalty. They told me to call anytime and one of them would answer questions plus you can go to the dietitian to see what’s best to eat etc. They told me before the treatments to eat healthy meals every day. ( I live alone so tend to do what I want like if I don’t want to cook sometimes just make popcorn) I’ve been much better.
So ask questions and they should be treating you as well as our US friends that are paying a big price for their treatments. I keep saying that I thank God I live in Canada.
Think positive and get exercise! I walk everyday I can on wooded trails and it’s so calming being in nature. I saw that on tv that it’s so good for health and mental reasons. I’m turning 86 this month and I’ve been like the energizer bunny! Take care and keep me informed. 💕🙏

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I know we’re neighbours but I meant we share a continent lol.. I would definitely go to the Mayo clinic but I don’t have medical insurance…it would be a costly thing if you also need accommodations and so on, not to mention that I’m a poor traveller…I realized very quickly when I joined this group that things were very different for me in my medical care versus what I read here…they have private clinics in Canada but the existing medical care is outdated and unattainable for people with a more limited income. It’s far from perfect what they have but I heard that they are working on a health plan that also going to be more attainable for everyone and will be based on income..this is hopeful for people like me. I shall look forward to hearing from you when you’re able and share what you are going through..I like the pictures, everyone is so happy and enjoying where they are…thanks again and all the best wishes for you amen

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@frouke

@soupycampbell …thank you for letting me know how you are doing…I wish it was possible to change my way of looking at things.. I’ve always been a pessimistic person but now with my health problems I am even worse. I had lung cancer twice and both times it was surgically removed with no further treatment.. I was told I can’t have anymore surgery because my lungs are too damaged.. I don’t think I can do chemo but perhaps radiation if necessary…I live in Canada so we’re neighbours but not close enough for coffee lol…thank you again for your wonderful optimism and please know that I draw strength from what you are saying, I wish only the best for you and hearing about your accomplishments amen 🙏

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Thanks for your reply. I was assuming since you said you were close to the Washington border as well that you were close to me! It would have been nice. Yes, I hear you and I guess we both just have to enjoy life while we’re fairly healthy to enjoy it and see what the future holds. Please keep in touch and I will do the same. Like I said I’ll know more when they do another scan. I still need to ask how big the new one is on my lower back. It’s not that bad as yet just some lower back pain which I just take an Aleve.
Take care and prayers sent your way.

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Stage 3a lung cancer is curable at the Mayo Clinic. Enjoy...

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@soupycampbell …thank you for letting me know how you are doing…I wish it was possible to change my way of looking at things.. I’ve always been a pessimistic person but now with my health problems I am even worse. I had lung cancer twice and both times it was surgically removed with no further treatment.. I was told I can’t have anymore surgery because my lungs are too damaged.. I don’t think I can do chemo but perhaps radiation if necessary…I live in Canada so we’re neighbours but not close enough for coffee lol…thank you again for your wonderful optimism and please know that I draw strength from what you are saying, I wish only the best for you and hearing about your accomplishments amen 🙏

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@frouke

@soupycampbell, I am truly motivated by what you said..it apparent that you know yourself well and what is best for you..I on the other hand tend to freeze up when I hear what some doctor says… I always had a strong voice but I’ve become more withdrawn and I don’t like it, thank you for the strength you show, it’s very inspiring for me and I truly wish only the best for you.

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Hi @frouke : Thought I would give you an update. I talked to several cancer docs and they wanted me to get radiation. The last one at that time said I could do either 5 low dose or 10 high doses which he suggested the higher. He was leaving on a 2 mth sabbatical so I kinda rushed my answer and said I would do the 10. I thought about it and talked to my family Dr and said I was leaning toward getting the low dose so he suggested to try it and if there were bad side effects I could stop if that’s what I wanted. I did try that and started on Sept 8 and finished on the 14th. It did bother my esophagus but the clinic Dr suggested taking Pepcid A twice daily which pretty much did the trick. I lost some energy but went to California twice and just back from the last one which was one week and felt the best I’ve been. As usual I’ve just gone by my gut feeling! You never know it may have helped in slowing it down. Guess I’ll find that out probably I’m assuming in 3-4 months they’ll do another scan.
Hoping you’re doing well and to let you know I’m in White Rock so maybe you are too! If so let me know and I’ll buy you a coffee.
Joan

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@mrnootz

CT scan every 3 months for 2 years, followed by CT scans every 6 months for the next 3 years. Once a year after the 5 year mark. I am patient #1 for the Mayo Clinic using Ablation first on lung tumors. Hopefully at some point, stage 3 can be treated out-patient.

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Go research! It makes me happy to know that a new treatment approach worked for you. Hoping for many others too!

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