Adenocarcinoma - newly diagnosed

Posted by Sandy @pixiedust, Feb 26, 2023

Hello. I am new to this group. Thank you in advance for any guidance and or support you have to offer. I have been diagnosed with adenocarcinoma of the upper right lung. Have had a bronchocoscopy, x-rays, CT and lung biopsy - which determined the diagnosis. I have an appointment this Tuesday for a PET scan to determine staging, and a breathing test will follow. The only symptom I have had is hoarseness in my voice. Otherwise I feel fine. I am simply terrified and still in shock.
Pixiedust

Interested in more discussions like this? Go to the Lung Cancer Support Group.

"...increased dosage on my own". That is a surprising comment. Where is your doctor in all of this? Did your doctor tell you to increase quantity on your own? Gabapentin is considered a "controlled substance" by my pharmacy - which means they would not refill until the very end of my prescription quantity. Quantity prescribed is also controlled by my insurance company. So if your doctor has prescribed a certain quantity - that will be tied to a certain date - and you will run out before it is time to renew. Pain after surgery is a discussion to have with your doctor.

REPLY
@vic83

You appear to be on a lower dosage than I am or Laurab25 who is also on 900mg/day. I started with 300mg/first day, 600mg/second day and then 900mg in continuation.

Jump to this post

Yes I only started at 75 mg, and increased dosage myself to 150, however today it’s happening again. I don’t think these smaller doses are doing it for me but I think the doctors want to start small and work your way up to the higher dose and fingers crossed by the time you get there the nerves have regenerated. I don’t know that, just guessing. I’m sure I’ll be taking three 75 mg pills tomorrow. I’ll catch up to you and Laura in no time if this keeps happening.

REPLY
@laurab25

I’m 5 months on 900 mg of Gabapentin & it helps a little, but my nerve pain & the pulling feeling is still there only it’s getting a little better. I’m going to try a pain Dr. & if that doesn’t work acupuncture? Pulmonologist said it could take 6 months to a year. An article I read said maybe up to 2 years. Ugh! I know how you feel. I sometimes sit in the bathroom & cry. (I don’t want my husband to hear me)

Jump to this post

I am a long way from 5 months, and they told me it could last 6 months and I don't think they are telling me everything. I woke up this morning and when I tried to get out of bed I had severe pain, I didn't know if I would be able to get out of bed. It felt like a tight belt around the chest and then a rib jabbing into the flesh going front to back. It is better once I get up, but I was wondering if I should go to ER. I don't want to take Tylenol because at this point it would be long term use and that is not good for one.

REPLY
@juneoake

I guess I spoke too soon the magic I spoke of is no longer there. Excruciating pulling and burning now, I’ll try going up another 75 mg. I’m a person who never takes and pill and having to take this even just twice a day pisses me off!

Jump to this post

You appear to be on a lower dosage than I am or Laurab25 who is also on 900mg/day. I started with 300mg/first day, 600mg/second day and then 900mg in continuation.

REPLY
@juneoake

I’m taking the same type drug…initially 75 mg but it wasn’t doing much. I doubled and started taking 2 instead of 1 and magically I’m not feeling the pulling and getting any more shocks! 150 mg now

Jump to this post

I guess I spoke too soon the magic I spoke of is no longer there. Excruciating pulling and burning now, I’ll try going up another 75 mg. I’m a person who never takes and pill and having to take this even just twice a day pisses me off!

REPLY

I’m 5 months on 900 mg of Gabapentin & it helps a little, but my nerve pain & the pulling feeling is still there only it’s getting a little better. I’m going to try a pain Dr. & if that doesn’t work acupuncture? Pulmonologist said it could take 6 months to a year. An article I read said maybe up to 2 years. Ugh! I know how you feel. I sometimes sit in the bathroom & cry. (I don’t want my husband to hear me)

REPLY
@juneoake

I’m taking the same type drug…initially 75 mg but it wasn’t doing much. I doubled and started taking 2 instead of 1 and magically I’m not feeling the pulling and getting any more shocks! 150 mg now

Jump to this post

That's great. I am taking 300mgx3/day for total 900mg/day and am still having considerable pain. And I have hit the six-week mark which is usually a turning point. My ribs hurt, it hurts to cough and touching my skin hurts and then there are the jabs of pain. Only really improvement is my left arm is much better.

REPLY
@vic83

Hi Juneoake - me too, am almost 6 weeks out from VAT surgery left lung wedge resection upper lobe. I have lots of nerve pain and am now taking Gabapentin for nerve pain. It is hard to estimate how much approval maybe 20%. My left arm pain is much better, but nerve pain especially in front is still there.
I was told it may take 6 months for it to go away.

Jump to this post

I’m taking the same type drug…initially 75 mg but it wasn’t doing much. I doubled and started taking 2 instead of 1 and magically I’m not feeling the pulling and getting any more shocks! 150 mg now

REPLY

God be with you on this new journey. March 2019 I was also diagnosed with
Adenoencarcinoma stage 4 and metastasize to 2 other places. Tumor in right lung and no in kidney and stomach. .notgels

REPLY
@juneoake

I am recovering from a lower left lung lobectomy to rid me of early stage carcinoma. Pathology tests after surgery tells me I am totally cancer free! No chemo or radiation required, best news ever. However the surgery was not easy. Still trying to get rid of the nerve pain and pulling, hoping it doesn’t last too long!

Jump to this post

Hi Juneoake - me too, am almost 6 weeks out from VAT surgery left lung wedge resection upper lobe. I have lots of nerve pain and am now taking Gabapentin for nerve pain. It is hard to estimate how much approval maybe 20%. My left arm pain is much better, but nerve pain especially in front is still there.
I was told it may take 6 months for it to go away.

REPLY
Please sign in or register to post a reply.