Adenocarcinoma - newly diagnosed

Posted by Sandy @pixiedust, Feb 26, 2023

Hello. I am new to this group. Thank you in advance for any guidance and or support you have to offer. I have been diagnosed with adenocarcinoma of the upper right lung. Have had a bronchocoscopy, x-rays, CT and lung biopsy - which determined the diagnosis. I have an appointment this Tuesday for a PET scan to determine staging, and a breathing test will follow. The only symptom I have had is hoarseness in my voice. Otherwise I feel fine. I am simply terrified and still in shock.
Pixiedust

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@cmcguire10

Morning! Yay! Another person that loves coffee! Always the first thing I want when I wake up from a surgery! Unfortunately they wouldn’t let me have it, or food, for a couple days. That just made it taste all the better when I did get to drink it!
Anyway, I agree about the waiting time! I am now 6 days post op and waiting for the results of the lymph nodes that were removed, along with my segmentectomy and a wedge. They were supposed to be in yesterday but that didn’t happen. Kind of leaves the next phases in the air but I have learned after all of this just to be patient because worrying and stressing doesn’t do anything good. Hang in there! Good Luck to you! God Bless you and watch over you!
Cindy

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Thank you. You’ve really been through a lot. May you heal well and speedily. Thank you for your encouragement.
Diane

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@dianemb

One of my oncology doctors told me patients have told him the early weeks of the unknown are the hardest. For me it was exhausting and I felt at such loose ends. I do feel more calm now that I am in a treatment plan. I have two more standard treatments for this nsc lung cancer planned. Not that these months will be easy but each morning I think yay, I can get to my coffee.

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Morning! Yay! Another person that loves coffee! Always the first thing I want when I wake up from a surgery! Unfortunately they wouldn’t let me have it, or food, for a couple days. That just made it taste all the better when I did get to drink it!
Anyway, I agree about the waiting time! I am now 6 days post op and waiting for the results of the lymph nodes that were removed, along with my segmentectomy and a wedge. They were supposed to be in yesterday but that didn’t happen. Kind of leaves the next phases in the air but I have learned after all of this just to be patient because worrying and stressing doesn’t do anything good. Hang in there! Good Luck to you! God Bless you and watch over you!
Cindy

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Stay strong. I am newly diagnosed and having a pet scan Saturday. All I know is that my oncologist said, if this is stage 3A (if pet scan doesn’t show anything) then this is highly treatable if not curable.

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@cmcguire10

Good Luck to you Sandy! I had the EBUS bronchoscopy on my lung lymph nodes. 3 different ones. It wasn’t bad, just scary waiting for results, but they put them on the portal before I got to the parking lot to go home. My Segmentectomy is scheduled for next Friday, the 24th. I’m anxious and scared but also keeping myself busy by trying to get everything in place for my recovery at home. It’s been a whirlwind with all the appointments and still trying to work at my job. But I think if I had the time to just sit and think about everything, I might put myself into a depression and that would not be good for anyone. Sometimes I forget it’s NOT just affecting me, my husband and children (grown) are affected just as much as they have to also go through this with me. I Pray 🙏 that everything goes well for you and everyone else that is going through this! Not a community I ever wanted to be a part of, but so glad this community is here to talk with! God Bless you All!

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One of my oncology doctors told me patients have told him the early weeks of the unknown are the hardest. For me it was exhausting and I felt at such loose ends. I do feel more calm now that I am in a treatment plan. I have two more standard treatments for this nsc lung cancer planned. Not that these months will be easy but each morning I think yay, I can get to my coffee.

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@cornelius775

@pixiedust Sandy. Hello Sandy, I recall being terrified and in shock as well, in very similar circumstances. But, once I received the final diagnosis, that same day as the doctors came up with their planning for my treatment, a heavy weight seemed to fall down from my shoulders. That kind of turned a switch. A whole lot of frustrating uncertainty was suddenly gone. Despair seemed to turn into some kind of “looking forward into a brighter future”. When treatment starts, as unpleasant as it is, I got the feeling that something was happening at last. No more standstill, the world and planet Earth started to move and turn around again. I was diagnosed with stage 3 AAA. Tumor of 25 by 21 mm in right middle lung. After 2 rounds of chemo and immune therapy, the tumor had shrunk to 18 by 10. A champagne cork flew into the air. Will know next week if the 3rd round had a similar good result. Next step is surgery, 4 weeks from now. So hard to imagine I was once in shackles, the uncertainty was the worst… For me, my morale and confidence just got better, as time went by. I truly hope you might go through that phase as well. Hoping my story and my words might make it a little easier for you, to get you through this episode. Wally.

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Thanks so much Wally. It certainly does help...kind words and encouragement are the best! I will know more after the Mediastinoscopy next Wednesday...hoping for a good outcome.

Thanks again...Sandy

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@pixiedust Sandy. Hello Sandy, I recall being terrified and in shock as well, in very similar circumstances. But, once I received the final diagnosis, that same day as the doctors came up with their planning for my treatment, a heavy weight seemed to fall down from my shoulders. That kind of turned a switch. A whole lot of frustrating uncertainty was suddenly gone. Despair seemed to turn into some kind of “looking forward into a brighter future”. When treatment starts, as unpleasant as it is, I got the feeling that something was happening at last. No more standstill, the world and planet Earth started to move and turn around again. I was diagnosed with stage 3 AAA. Tumor of 25 by 21 mm in right middle lung. After 2 rounds of chemo and immune therapy, the tumor had shrunk to 18 by 10. A champagne cork flew into the air. Will know next week if the 3rd round had a similar good result. Next step is surgery, 4 weeks from now. So hard to imagine I was once in shackles, the uncertainty was the worst… For me, my morale and confidence just got better, as time went by. I truly hope you might go through that phase as well. Hoping my story and my words might make it a little easier for you, to get you through this episode. Wally.

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@bellsina71

The gene marker test will probably take the longest, but it is imperative that they have that because it is so helpful to determine what is driving the cancer so they can treat it the right way. It's amazing what they can do now based upon markers and genes! I hope your MRI turns out well, and I'm glad things are moving along for you. I know what you mean about them not moving fast enough though! I think we all feel that way when were first diagnosed with cancer at the beginning, it's all the unknowns!
Angela
Angela

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Thanks Angela...words of encouragement are always warmly received! I also heard from my Pulmonologist and the pulmonary function test was almost near "normal" so it surgery is determined, good lungs will help!

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@pixiedust

Good morning! A couple of updates: I had the pulmonary function test on Monday - have not received any info yet, and I am scheduled for a brain MRI on Saturday. I feel that things seem to be moving but not fast enough. Also, still waiting for the gene marker results which don't seem to have come back yet...does anyone know how long that takes? Also, has anyone had a mediastinoscopy done? When I spoke with the surgeon he mentioned that would be done IF surgery was an option...

Thanks as always...
Sandy

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The gene marker test will probably take the longest, but it is imperative that they have that because it is so helpful to determine what is driving the cancer so they can treat it the right way. It's amazing what they can do now based upon markers and genes! I hope your MRI turns out well, and I'm glad things are moving along for you. I know what you mean about them not moving fast enough though! I think we all feel that way when were first diagnosed with cancer at the beginning, it's all the unknowns!
Angela
Angela

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Good Luck to you Sandy! I had the EBUS bronchoscopy on my lung lymph nodes. 3 different ones. It wasn’t bad, just scary waiting for results, but they put them on the portal before I got to the parking lot to go home. My Segmentectomy is scheduled for next Friday, the 24th. I’m anxious and scared but also keeping myself busy by trying to get everything in place for my recovery at home. It’s been a whirlwind with all the appointments and still trying to work at my job. But I think if I had the time to just sit and think about everything, I might put myself into a depression and that would not be good for anyone. Sometimes I forget it’s NOT just affecting me, my husband and children (grown) are affected just as much as they have to also go through this with me. I Pray 🙏 that everything goes well for you and everyone else that is going through this! Not a community I ever wanted to be a part of, but so glad this community is here to talk with! God Bless you All!

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Good morning Sandy, thanks for keeping us posted. From what I’ve seen/heard the biomarker testing generally gets sent out to a specialized lab, and can take a minimum of 2 weeks. Good luck with the MRI, hoping for good news.
Take care, Lisa

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