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Adenocarcinoma - newly diagnosed
Hello. I am new to this group. Thank you in advance for any guidance and or support you have to offer. I have been diagnosed with adenocarcinoma of the upper right lung. Have had a bronchocoscopy, x-rays, CT and lung biopsy - which determined the diagnosis. I have an appointment this Tuesday for a PET scan to determine staging, and a breathing test will follow. The only symptom I have had is hoarseness in my voice. Otherwise I feel fine. I am simply terrified and still in shock.
Pixiedust
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It is a type of lung cancer caused by a gene mutation. Epidermal Growth Factor Receptor. Your doctor would have told you if you have it.
That’s interesting. I wondered why they want to take a whole lobe when it is small and has not spread.
I am working on getting another opinion from another hospital.
I wouldn’t even know how to start going to a hospital out of town. I’m in the NW suburbs of Detroit Michigan.
Good to hear of your recent good news! Thanks for your help.
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1 ReactionWhat is EgRf?
No not Mayo Clinic. I’m in Michigan. I just found this forum looking for info.
I had the breathing test and it was OK. I’m waiting for the stress test-May 1.
I went to my regular doc and they said I should get another opinion. I’m working on that now.
Thank you. Dana Farber has a forum for people with EGFR cancer. You can check their website for more information.
@mayocid1 Hi, Nancy! 5 years ago, I was diagnosed as a 2b. The local surgeon wanted to do a lobectomy and said I would be in the hospital for a week, with the first 2 nights in ICU. That sounded extreme since we had been following since before it was big enough to biopsy, so we sought an opinion at Mayo. A gifted surgeon said with my existing COPD that he did not want to take out that much lung. He recommended removing the wedge with the cancer and the 2 wedges around it. They went in through the back with minimal rib involvement. They had me up walking the first night and out in 4 days. It did spread to one lymph node, so I returned for 4 chemo treatments. And this week I returned for my 5-year check-up, where I remain clear! Yippee!!
The only issue I had with my lung deflating was during the initial biopsy at my local hospital where my lung partially collapsed. Since you are still not comfortable with your choices, would you consider getting another opinion? If travelling to one of the biggies isn't realistic, can you check to see which is the best facility in your area? It wasn't until this happened to me that I saw how dismal the hospital connected to my regular doctor was with lung cancer compared to another nearby hospital. And, how much more expensive it would have cost for the stay they had planned!
Thank you for the explanation! I am trying to understand all I can about all the different cases so if something new comes up with me, I might be able to have a better idea of what to expect. I wish you the best of luck and God Bless You!
I was also 1b. I had my right lower lobe removed and had clear margins. not other treatment. Curious about chemo as well....
My stage is 1b but I have lymphovascular and pleural invasion, which means some cancer cells could not be removed with surgery. So although prognosis is excellent, the oncologist thinks chemo is warranted. I have EGFR mutation related cancer and will also be taking Tagrisso targeted therapy - one pill a day - for 3 years. She is expecting a cure.
Franciekid! Great to hear everything is good for you! You and I must have had our surgeries about a week apart! I am curios like mayocid1, why are your Oncologist and Dr. having you go through Chemo if you had a small nodule and at stage 1? I asked my Surgeon about me needing chemo or anything and she said no because I was at a 1a and they don’t usually need to do chemo or that on stage 1a or 1b. Like I said, just wondering???