1. < Lung Cancer

Adenocarcinoma - newly diagnosed

Posted by Sandy @pixiedust, Feb 26, 2023

Hello. I am new to this group. Thank you in advance for any guidance and or support you have to offer. I have been diagnosed with adenocarcinoma of the upper right lung. Have had a bronchocoscopy, x-rays, CT and lung biopsy - which determined the diagnosis. I have an appointment this Tuesday for a PET scan to determine staging, and a breathing test will follow. The only symptom I have had is hoarseness in my voice. Otherwise I feel fine. I am simply terrified and still in shock.
Pixiedust

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Merry, Alumni Mentor | @merpreb | Jul 17, 2023
In reply to @meka "Your courage and tenacity amaze me. I continue with regular scans, finally moved to be closer..." + (show)
@meka

Your courage and tenacity amaze me.
I continue with regular scans, finally moved to be closer to Mayo and get some continuity of care. Not getting any younger. Thanks

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Aww, thank you, neither am I! lol I'm so glad you are taking care of yourself!

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meka | @meka | Jul 17, 2023
In reply to @merpreb "Hi Meka- So good to hear from you, even in my circumstance. Thank you. What is..." + (show)
@merpreb

Hi Meka- So good to hear from you, even in my circumstance. Thank you. What is going on with you?

xxoo
Merry

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Your courage and tenacity amaze me.
I continue with regular scans, finally moved to be closer to Mayo and get some continuity of care. Not getting any younger. Thanks

REPLY
1 reply
nonobaddog | @nonobaddog | Jul 14, 2023

Just to be clear - you can have just a PET scan alone and it will show the high metabolism spots but it may be difficult to see exactly where they are. Typically they do a PET/CT scan where the PET scan is done along with the CT scan and this shows the detailed anatomy and location of the cancer much better.
They can also do a PET/MRI scan but the PET/CT scan is more common.
It is easy to just say PET scan when you mean PET/CT scan but it is incorrect and misleading.

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Merry, Alumni Mentor | @merpreb | Jul 13, 2023
In reply to @pixiedust "Merry.....So please keep us up to date! Optimistic for a good outcome! Sandy" + (show)
@pixiedust

Merry.....So please keep us up to date! Optimistic for a good outcome!

Sandy

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Sandy- Everything is stable right now. I'll have another CT in 6 months. Thank you.

Merry

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Merry, Alumni Mentor | @merpreb | Jul 13, 2023
In reply to @meka "I'm sorry for your loss, but glad you are back on board and healing, energy hugs!!" + (show)
@meka

I'm sorry for your loss, but glad you are back on board and healing, energy hugs!!

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Hi Meka- So good to hear from you, even in my circumstance. Thank you. What is going on with you?

xxoo
Merry

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1 reply
soupycampbell | @soupycampbell | Jul 13, 2023
In reply to @stanlieghsmith69 "Is there anyone here they can offer me some help as to what I should do..." + (show)
@stanlieghsmith69

Is there anyone here they can offer me some help as to what I should do I live in Kingston Ontario Canada the Cancer Clinic has been in touch with me but I have not been appointed a doctor until I have this pet scan done

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I checked on line and you can get a PET Scan in Kingston. I would call them or your doctors office and just tell them you are unable to get to Toronto. I’ve found the cancer clinics and everyone I’ve dealt with to be wonderful and most accommodating. I’ve put their contact information here for you. It’s the Kingston Health Sciences Centre. Good Luck
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meka | @meka | Jul 13, 2023
In reply to @bpb "Hi Merry, I am so sorry for your loss. Sending you love and hugs, BPB13" + (show)
@bpb

Hi Merry,

I am so sorry for your loss.

Sending you love and hugs,
BPB13

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I'm sorry for your loss, but glad you are back on board and healing, energy hugs!!

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1 reply
stanlieghsmith69 | @stanlieghsmith69 | Jul 12, 2023
In reply to @stanlieghsmith69 "Just to add to my comment above I've had COPD for the last 15 years" + (show)
@stanlieghsmith69

Just to add to my comment above I've had COPD for the last 15 years

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Is there anyone here they can offer me some help as to what I should do I live in Kingston Ontario Canada the Cancer Clinic has been in touch with me but I have not been appointed a doctor until I have this pet scan done

REPLY
1 reply
stanlieghsmith69 | @stanlieghsmith69 | Jul 12, 2023
In reply to @stanlieghsmith69 "I had two catskins at my local hospital and they came back with findings I'm not..." + (show)
@stanlieghsmith69

I had two catskins at my local hospital and they came back with findings I'm not even sure of but I do have lung cancer they told me and they have booked me for a breathing test this Friday and on the 20th I have to go for a PET scan in Toronto that is 165 miles away I don't know how I'm going to get there I live in Kingston Ontario and I went in the winter I had a bad cold I thought and my family doctor no tests or anything whatsoever give me two separate antibiotics and two separate prednisone prescriptions which done nothing I went to the hospital on my own in April took the first CAT scan and I said they seen spots on my lung I had to have another one done and now they're sending me for this breathing test and to Toronto for the Pet Scan I don't even know how to get there I'm on a pension I'm 67 years old and have no income to say

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Just to add to my comment above I've had COPD for the last 15 years

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1 reply
stanlieghsmith69 | @stanlieghsmith69 | Jul 12, 2023

I had two catskins at my local hospital and they came back with findings I'm not even sure of but I do have lung cancer they told me and they have booked me for a breathing test this Friday and on the 20th I have to go for a PET scan in Toronto that is 165 miles away I don't know how I'm going to get there I live in Kingston Ontario and I went in the winter I had a bad cold I thought and my family doctor no tests or anything whatsoever give me two separate antibiotics and two separate prednisone prescriptions which done nothing I went to the hospital on my own in April took the first CAT scan and I said they seen spots on my lung I had to have another one done and now they're sending me for this breathing test and to Toronto for the Pet Scan I don't even know how to get there I'm on a pension I'm 67 years old and have no income to say

REPLY
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