Just diagnosed with Endometrioid Adenocarcinoma: What to expect?

Posted by rose53 @rose53, Oct 21, 2021

I was just diagnosed with this uterine cancer. I am 68 and I'm so freightened. Waiting to see doctor for hysteroctomy. This is all I know. I had a biopsy done and this is the result. Anyone please let me know what ro expect and do before hand and any suggestions are embraced. ❤

Interested in more discussions like this? Go to the Gynecologic Cancers Support Group.

Profile picture for cmb2022 @cmb2022

Oh @naturegirl5 ,
Thank you so much for the update!
I have happy tears in my eyes as I am writing. I have found myself thinking about you so many times over the past few days.
Every 4 months is wonderful.
Thank you! I am doing well. It has been pretty chilly here today and I believe tomorrow too and the wind is fierce. I will be so glad when the weather turns warmer again (and stays that way).
Thank you so much for the wonderful update my friend!
Have a great remainder of the week.

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@cmb2022
Thank you for such a wonderful note. I feel so cared for knowing that you were thinking of me so often during the past few days.
I'm going back to work today but fortunately the weekend starts tomorrow. I need the weekend to recover from the long drive and all the anxiety surrounding the appointments. Honestly it was worth it as I get such comprehensive care at Mayo Clinic. I'm thankful that I have the insurance and the means to get my care at Mayo.
I have plans for brunch with two friends on Sunday. With rain coming in it looks like I won't be outside much this weekend. What do you have planned for the weekend that will be restorative for your soul?

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Profile picture for springangel @springangel

I don't know if they could help me. What kind of insurance do they accept on an emergency basis with a referral from my doctor? I don't think I can wait much longer. Please let me know how they could help please and thank you

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@springangel, you can see the insurance types Mayo Clinic accepts here:
- Insurance types accepted at Mayo Clinic https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/insurance/accepted-insurance

If you don't see your insurance listed, please call Patient Account Services to inquire:
https://www.mayoclinic.org/patient-visitor-guide/billing-insurance/contact-us

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Profile picture for Colleen Young, Connect Director @colleenyoung

Springangel, might Mayo Clinic in Phoenix, AZ or Rochester, MN be an option for you to consider?

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I don't know if they could help me. What kind of insurance do they accept on an emergency basis with a referral from my doctor? I don't think I can wait much longer. Please let me know how they could help please and thank you

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Profile picture for rose53 @rose53

Hello,
Just read your post. I am just very upset for you. You are absolutely right. CT scan, blood test, all that should have been first and foremost. Their lack of doing all that immediately puzzles me. Does it have to do with insurance? Please keep checking to other hospitals until they can give you a Plan! Mine was total hystectomy..I even knew that would have to happen and they can go in there and see what all is going on..You have to be persistent...even if you need to drive a long way like I did to Mayo for 5 hours..so be vigilant..hope all works out for you soon.
Rosemarie rose53

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Thank you for your response. And for getting it! I am on medi-cal/INLAND HEALTH CARE PLAN OF. IFORNIA. I don't think mayo takes medi-cal , do they? I'm just so upset that my mouth gets me in trouble when I start standing up for myself. As I write this I'm in tears knowing these 2 years that have been wasted are going to help end my life early.

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@springangel

You are hearing back from the best virtual support group. Everyone who has responded has been frightened just like you and been confused about where to turn next. I was in shock when I first got my diagnosis of endometriod adénocarcinoma. I made one wrong turn on my way home from the gynecologist's off ice on my way home and would up on streets I’d never been on before. Honestly it was a surreal experience.

Who are your local supports? Do you have family and/or friends that can help advocate for you? Do you have a pet army care physician who will make a referral for another opinion?

I know what it feels like to be filled with worry. We are here for you so let’s imagine we are all seated around a table to help support you and help you figure this out together.

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I'm pretty much alone dealing with this for 2 years. I have made some horrible mistakes along the way because I have mental disabilities that leave me stuck and angry and my mouth got me banned from one organization! I don't know where to turn because that incident will follow me no matter where I go now! I'm in California and have been rejected by the top 3 medical centers. I need help really bad. I have been feeling so sick and it's getting worse every day! I wish a doctor would take me in and try to understand my mental instabilities and give me a break. I'm willing to do anything to get help.

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Profile picture for Helen, Volunteer Mentor @naturegirl5

@cmb2022
Oh, thank you so much. Your healing prayers have sure worked. I’m finished with my appointments and there was all good news. The CT scan was negative although there is a 1 cm nodule on my thyroid they are watching. It was present on the PET/MR I had in November, 2021 and there has been no change. The physical exam revealed nothing new and I’m healing well. Apparently many people have ongoing side effects from radiation therapy and fortunately I am not. So I feel very encouraged and ready to face forward. My next check up will be in 4 months. I’ll be on that 4 month schedule for two years.

I’ve been thinking about you too. How are you feeling and how is your week going.? I’m wishing you sunny Spring weather with time outside on your property in the longer daylight hours.

Blessings to you, my friend.

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Oh @naturegirl5 ,
Thank you so much for the update!
I have happy tears in my eyes as I am writing. I have found myself thinking about you so many times over the past few days.
Every 4 months is wonderful.
Thank you! I am doing well. It has been pretty chilly here today and I believe tomorrow too and the wind is fierce. I will be so glad when the weather turns warmer again (and stays that way).
Thank you so much for the wonderful update my friend!
Have a great remainder of the week.

REPLY
Profile picture for springangel @springangel

And , BTW, thank you for responding so quickly . I didn't think anyone would reply. Thanks for the kind words.

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@springangel

You are hearing back from the best virtual support group. Everyone who has responded has been frightened just like you and been confused about where to turn next. I was in shock when I first got my diagnosis of endometriod adénocarcinoma. I made one wrong turn on my way home from the gynecologist's off ice on my way home and would up on streets I’d never been on before. Honestly it was a surreal experience.

Who are your local supports? Do you have family and/or friends that can help advocate for you? Do you have a pet army care physician who will make a referral for another opinion?

I know what it feels like to be filled with worry. We are here for you so let’s imagine we are all seated around a table to help support you and help you figure this out together.

REPLY
Profile picture for cmb2022 @cmb2022

@naturegirl5 ,
I just wanted to tell you that you have been on my mind and in my prayers. I hope your appointment is going well and that good news is surrounding you.

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@cmb2022
Oh, thank you so much. Your healing prayers have sure worked. I’m finished with my appointments and there was all good news. The CT scan was negative although there is a 1 cm nodule on my thyroid they are watching. It was present on the PET/MR I had in November, 2021 and there has been no change. The physical exam revealed nothing new and I’m healing well. Apparently many people have ongoing side effects from radiation therapy and fortunately I am not. So I feel very encouraged and ready to face forward. My next check up will be in 4 months. I’ll be on that 4 month schedule for two years.

I’ve been thinking about you too. How are you feeling and how is your week going.? I’m wishing you sunny Spring weather with time outside on your property in the longer daylight hours.

Blessings to you, my friend.

REPLY
Profile picture for Helen, Volunteer Mentor @naturegirl5

@cmb2022 We leave for Mayo Clinic tomorrow. It's a long drive but we have done it so many times that we have our favorite places to stop. This time of year I like to stop in Necedah, WI where there is a a national wildlife refuge. Since we into Spring bird migration I'll walk a few trails and go up a tower to see what's out on the water. In 2020 I saw Whooping cranes! They migrate with Sandhill cranes and I did more than one double take before I realized I was looking at Whooping cranes. That was a first for me.

We had temperatures today in the 70's and it really felt like Spring. I poked around in my garden bed and found the crocus and hyacinth that will be in bloom within the next week. I find "working" in the yard to be meditative and satisfying. Do you feel like that on your two acres?

I'm often fatigued too. I wonder if it's still from the radiation therapy, cancer, or getting older. Or all of these. It seems like not all that long ago I could stay out in my yard all day and do gardening chores but not anymore. I have decided though that I'm done with raking leaves. Our house is in the woods so no one sees our yard anyway and I don't need a pristine setting. I figure the bugs, birds, and other wildlife will continue to enjoy those damp leaves on the lawn.

I hope you have a good week, my friend.

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@naturegirl5 ,
I just wanted to tell you that you have been on my mind and in my prayers. I hope your appointment is going well and that good news is surrounding you.

REPLY
Profile picture for springangel @springangel

Yes and in the last 2 years I have done that with no progress. I first went to ucr women's health, then Loma loinfa and lastly the city of hope which was a disaster. The important thing here is NOBE of those places did any tests of ANY kind!! After two years don't ya think a blood test, CT scan of my pelvis and chest and another biopsy to just be sure of where my cancer is at this point? I'm so unhappy and disgusted at the lack of care these places DONT HAVE for me and my situation! 2 years is a long time to go without any any any treatment! Sorry for ranting but I'm fighting for my life, in my mind anywYs

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Hello,
Just read your post. I am just very upset for you. You are absolutely right. CT scan, blood test, all that should have been first and foremost. Their lack of doing all that immediately puzzles me. Does it have to do with insurance? Please keep checking to other hospitals until they can give you a Plan! Mine was total hystectomy..I even knew that would have to happen and they can go in there and see what all is going on..You have to be persistent...even if you need to drive a long way like I did to Mayo for 5 hours..so be vigilant..hope all works out for you soon.
Rosemarie rose53

REPLY
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