Pain Pill Addiction and Neuropathy - Looking for Guidance

Posted by mom29907 @mom29907, Feb 2, 2020

I am a neuropathy sufferer, CMT, with minimal pain right now. However, my mother suffers from painful peripheral neuropathy. She is the reason I joined this group. I am looking for advice and guidance. My mother was treated by a neurologist for years and prescribed Percocet. She became addicted. Recently, her neurologist referred her to a pain clinic. Her Percocet prescription needed increased and he told her he could not do it. At the pain clinic, she was prescribed methadone. Upon her return visit, the doctor at the clinic “released” her, said she was an abuser of her pills. So, she not only is dealing with chronic pain she is suffering from withdraw symptoms from years of pill addiction. Watching this is heartbreaking. I am desperate to get her treatment for both conditions but she isn’t making it easy. I am looking for suggestion for successful treatments that don’t involve opioids. I was going to encourage her to try laser therapy but don’t think that will be an option due to how expensive it is. Any guidance, suggestions, etc. would be so greatly appreciated.

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@margaretob

This morning at 4 a.m. the NEUROPATHY EXPLODED…..I am sore all over all the way down to my feet.
TOOK MEDANX and the GABABENTIN pill TOGETHER and am trying to walk around , it is difficult…Hope somebody can say something to help…Margaretob

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@margaretob I hear what you are saying . My neck is so stiff and sore my thighs are burning and tight . I am up at 3 a.m. I wont be able to go back to sleep. I use cold water on thighs for some relieve wont take gabapentin anymore terrible side effects. I was taking 4 at night but with the dizziness and balance problems stopped it Im getting my heating pad out see if that will help . Maybe a drink will help . lol

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@lioness

@margaretob I hear what you are saying . My neck is so stiff and sore my thighs are burning and tight . I am up at 3 a.m. I wont be able to go back to sleep. I use cold water on thighs for some relieve wont take gabapentin anymore terrible side effects. I was taking 4 at night but with the dizziness and balance problems stopped it Im getting my heating pad out see if that will help . Maybe a drink will help . lol

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I’d give anything for my balance to come back in my dizziness to stop I’m dealing with it for over a year it’s driving me crazy

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@birdierobin I know mine was from the gabapentin . I never was that dizzy before and taking a shower was scary in the tub. I stopped it and it hasn't happened since . At one point several years ago I had vestibular problems the ear Dr sent me for testing and this all came back o.k. so he told me just to do the ear exercise I did them for a month and it did the trick . I did have some slight dizziness so started them again once or twice I was fine. Do you have any ear problems? That is the worse feeling . If so I,ll give you the ear exercise they are online. If you think it maybe you ears I would check with a ENT first.

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@helennicola

Gabapentin is the only prescription drug I take and if I had a choice I would not. I think I should probably be taking a larger dose but prefer to try to keep it at the lowest dose possible. I have found that taking an nsaid along with it helps although I can’t do it too often because it causes extreme vertigo for me upon awakening. The side effects from gabapentin are numerous, I’ll never understand why the drug co.’s can’t come up with a better solution.

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So sorry that so many people have side effects Gabapentin. I have been taking 2,400 mg every day for eight years and have had no side effects. It has saved my life! I guess I am the exception to the rule.

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@lioness

@birdierobin I know mine was from the gabapentin . I never was that dizzy before and taking a shower was scary in the tub. I stopped it and it hasn't happened since . At one point several years ago I had vestibular problems the ear Dr sent me for testing and this all came back o.k. so he told me just to do the ear exercise I did them for a month and it did the trick . I did have some slight dizziness so started them again once or twice I was fine. Do you have any ear problems? That is the worse feeling . If so I,ll give you the ear exercise they are online. If you think it maybe you ears I would check with a ENT first.

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Lioness- I have had a lot of ear testing at a vertigo clinic and I did test positive for the BPPV. After doing the exercises with or without them for three months, it hasn’t helped. I have gave up. The second opinion at Mayo is needed for that too! I’m busy in the tub in the kitchen living room I just hold on to everything and I have fallen several times fortunately I have not been hurt other things I’ve been broke. I fell onto $151 wooden bowl I had sitting on my coffee table and broke it! I did fall down the basement steps but I held onto the railing I hurt my foot for about three months but nothing major. I carry a big Walkingstick very big one that helps me walk when a regular cane does not. Dizzy pills don’t help at all I don’t take any medicine.
I have had months of therapy and I’m currently doing three days a week and Fitness Center for my balance nothing is helping

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@lioness

@birdierobin I know mine was from the gabapentin . I never was that dizzy before and taking a shower was scary in the tub. I stopped it and it hasn't happened since . At one point several years ago I had vestibular problems the ear Dr sent me for testing and this all came back o.k. so he told me just to do the ear exercise I did them for a month and it did the trick . I did have some slight dizziness so started them again once or twice I was fine. Do you have any ear problems? That is the worse feeling . If so I,ll give you the ear exercise they are online. If you think it maybe you ears I would check with a ENT first.

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PS Lioness I have been to ENT specialists as well same diagnosis nothing

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@birdierobin My post disappeared so sorry nothing has helped. How's your B.P.? Breaking that bowl had to hurt glad you didn't get cut. Walk slowly,carry a big stick lol 😆☹️

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@birdierobin

PS Lioness I have been to ENT specialists as well same diagnosis nothing

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@birdierobin .com, I had severe vertigo and dizziness (not the same) when I first started on the gabapentin. I saw 2 ENT’s who performed the head movements with no improvement. I then found a PT who specialized in vestibular problems and she was always able to help. It depends on who is performing those movements on your head as it depends so much on specific rotations depending on which ear canal is involved. (there are 3) After about 15 mo. the problem resolved like other symptoms from the gabapentin. I will experience vertigo when I take nsaids but it only lasts for 1hr. or so.

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@helennicola

@birdierobin .com, I had severe vertigo and dizziness (not the same) when I first started on the gabapentin. I saw 2 ENT’s who performed the head movements with no improvement. I then found a PT who specialized in vestibular problems and she was always able to help. It depends on who is performing those movements on your head as it depends so much on specific rotations depending on which ear canal is involved. (there are 3) After about 15 mo. the problem resolved like other symptoms from the gabapentin. I will experience vertigo when I take nsaids but it only lasts for 1hr. or so.

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@helennicola Did they have you sit up on bed or lying with your head hanging over? This is what I did for a month 2x a day It was tiring but worked

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@lioness

@helennicola Did they have you sit up on bed or lying with your head hanging over? This is what I did for a month 2x a day It was tiring but worked

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I did not have my head hanging off the bed but the PT has to try different movements to see which works for you to be able to determine which ear and which canal is the problem. Other wise they are not able to actually do the correct movement to free up the trapped crystals. Complicated but not every ENT is good at this.

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I had problems with dizziness (not caused by meds) — went to my primary care doctor who recommended a vestibular therapist — the treatments were hard (not painful) — what happens is that the tiny, tiny crystals move within the ear canals, and need to moved back to where they belong — after several treatments and home exercises, the dizziness was cured and has not come back — yeah!

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@birdierobin

Lioness- I have had a lot of ear testing at a vertigo clinic and I did test positive for the BPPV. After doing the exercises with or without them for three months, it hasn’t helped. I have gave up. The second opinion at Mayo is needed for that too! I’m busy in the tub in the kitchen living room I just hold on to everything and I have fallen several times fortunately I have not been hurt other things I’ve been broke. I fell onto $151 wooden bowl I had sitting on my coffee table and broke it! I did fall down the basement steps but I held onto the railing I hurt my foot for about three months but nothing major. I carry a big Walkingstick very big one that helps me walk when a regular cane does not. Dizzy pills don’t help at all I don’t take any medicine.
I have had months of therapy and I’m currently doing three days a week and Fitness Center for my balance nothing is helping

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@birdierobin I know you may not like the idea, but when I kept falling, I was prescribed a walker. It has kept me from falling. Maybe you could also get the doctor to send someone to your home to do an assessment of what you could do to make your home safer and help you keep from falling. For instance, no throw rugs or coffee tables. I also gave up going stairs. Another thing is to slow down your movements. I was advised by a physical therapist that turning fast, and rising quickly are among some things that can cause falls. I hope these suggestions help in keeping you fall free.

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