Additional Resources for PMR/GCA

Posted by tillysam @tillysam, Nov 16, 2022

Healthunlocked.com. An excellent forum for PMR and GCA.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

scpartain | @scpartain | Nov 17, 2022

Thanks for mentioning this site. I visited and signed up for discussion. Looking forward to participating.

John, Volunteer Mentor | @johnbishop | Nov 17, 2022

Hi @tillysam, Thanks for starting this discussion. You will notice that we changed the title a little to hopefully help members find the discussion. I've been a member of HealthUnlocked for a few years and it is a wealth of information and member experience like Connect.

They have a frequently asked questions page that is really useful for finding information on the site here:
https://healthunlocked.com/pmrgcauk/posts/private/148313422/new-faq%E2%80%99s-2022
Another site that I also shared in a reply on HealthUnlocked is the Patient Revolution which has some great tips for talking with your doctor or rheumatologist -- https://patientrevolution.org/visit-tools

Anyone else have a PMR or GCA resource they would like to share?

suetex | @suetex | Nov 17, 2022

PubMed is a great source for studies on just about any subject you can think of.

anotherpal | @anotherpal | Nov 17, 2022

This is a great forum. I have learned so much and how to cope with this new life. Advice is offered from people who know PMR.

tillysam | @tillysam | Nov 18, 2022

In reply to @suetex "PubMed is a great source for studies on just about any subject you can think of." + (show)

The problem, I think, with PubMed is that so many of the papers are quite old. I would love to see up to date information.

twistedwillow | @twistedwillow | Nov 18, 2022

The Facebook group PMR/GCA support is a very well moderated friendly supportive group.

John, Volunteer Mentor | @johnbishop | Nov 18, 2022

In reply to @tillysam "The problem, I think, with PubMed is that so many of the papers are quite old...." + (show)

Try using Google Scholar - https://scholar.google.com/ for finding the latest medical research papers. It lets you sort the results by year.

tillysam | @tillysam | Nov 18, 2022

In reply to @johnbishop "Try using Google Scholar - https://scholar.google.com/ for finding the latest medical research papers. It lets you..." + (show)

Thanks

John, Volunteer Mentor | @johnbishop | Jun 23 7:30am

Thought you all might be interested in these webinars for PMRGCAuk week 2024
-- Improving outcomes through exercise and activity by Will Gregory, Consultant Physiotherapist and Clinical Lead of Rheumatology at Salford Royal Hospital and BSR Vice President
-- A bit of both? Hidden complexities in PMR and GCA - Dr Sarah Mackie
https://pmrgca.org.uk/pmrgcauk-week-webinars/

tuckerp | @tuckerp | Jun 23 9:02am

In reply to @twistedwillow "The Facebook group PMR/GCA support is a very well moderated friendly supportive group." + (show)

I belong to the facebook page. It is good source and its where I self diagnosed myself. But so much of it becomes social media. Some days there are dozens of comments just looking for conversation and no one seems to listen to each other. It has been refreshing to me to gain knowledge from this site where everyone has an opinion that has been helpful. John also moderates it well.