@20highlander14, My acupuncturist, who seems to be very knowledgeable, says he can help with pain but not fix the root cause which in my case is spinal stenosis.
@20highlander14 Check out the following link… https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067
In that reading from Mayo they do note that Acupuncture could help, while Mayo does not mention Chiropractic.. there are all sorts of Chiropractic websites that say all sorts of things… That is the problem.. Can you believe any of them? . One needs to find Credible tests done in which measurable results can be defined.. My opinion of Chiropractic is not positive.. I live in Iowa where in Davenport, IA there is a bronze plaque that marks where the first Chiropractic adjustment was done to improve the hearing of a patient.. In that town there was/is the Palmer School of Chiropractic.. They owned the Radio Station and they advertised a lot back in my younger years.. K
John, Volunteer Mentor | @johnbishop | Dec 1, 2020
Hello @20highlander14, I would like to add my welcome to Connect along with @californialen, @ken82 and other members. I feel the same as @ken82 on chiropractors being helpful for neuropathy but that's just my opinion. You may find another discussion on Connect helpful if you have neuropathy caused by nerve compression and spine related issues.
Hello @20highlander14, I would like to add my welcome to Connect along with @californialen, @ken82 and other members. I feel the same as @ken82 on chiropractors being helpful for neuropathy but that's just my opinion. You may find another discussion on Connect helpful if you have neuropathy caused by nerve compression and spine related issues.
Hi @johnbishop john I am from Pakistan. You guys are lucky to be living in the States. It is a real challenge finding a physiotherapist trained at MFR therapy in countries like mine. Based on MRI reports i was initially told by a Malayasia-based neurologist and subsequently by a Bangkok-based Neurologist in August 2017 that the burning pain and numbness at the bottom of my feet was the result of my lumbar spinal stenosis
triggered by degenerative disc disease until I visited Mayo Clinic in Rochester in June 2018 where they blamed it on small fiber neuropathy despite the fact that all the tests were negative for small fiber neuropathy. That is why they called it idiopathic. So, it would not have harmed me trying MFR therapy for my lumbar, if we had trained MFR experts in Pakistan. I thank you John and everyone in this group for supporting each others and sharing experiences.
Hi @johnbishop john I am from Pakistan. You guys are lucky to be living in the States. It is a real challenge finding a physiotherapist trained at MFR therapy in countries like mine. Based on MRI reports i was initially told by a Malayasia-based neurologist and subsequently by a Bangkok-based Neurologist in August 2017 that the burning pain and numbness at the bottom of my feet was the result of my lumbar spinal stenosis
triggered by degenerative disc disease until I visited Mayo Clinic in Rochester in June 2018 where they blamed it on small fiber neuropathy despite the fact that all the tests were negative for small fiber neuropathy. That is why they called it idiopathic. So, it would not have harmed me trying MFR therapy for my lumbar, if we had trained MFR experts in Pakistan. I thank you John and everyone in this group for supporting each others and sharing experiences.
Hi @jeffrapp while I had all the blood work, xray, CT scan, nerve conduction, MRI, EMG and bone density, the team at Mayo didn't advise me the Skin biopsy. Based on their experience, they were quite confident that it was small fiber neuropathy.
Hi @nukhan
Yes, that approach is not unusual. The skin biopsy will almost certainly confirm the diagnosis that has already been made, and is therefore probably not necessary, when dealing with experienced neurologists. It is also expensive, and only done by a few labs, even here in the States.
I also have idiopathic small fiber PN. I beat up my neurologist until he agreed to do the test, which confirmed his diagnosis. As all of us are to an extent, I was desperate to find a treatable condition.
Unfortunately, nothing I have tried, including all the usual meds, helps very much, other than manipulating the environment that my feet live in.
What has been your experience?
Thanks
Jeff
Hi @nukhan
Yes, that approach is not unusual. The skin biopsy will almost certainly confirm the diagnosis that has already been made, and is therefore probably not necessary, when dealing with experienced neurologists. It is also expensive, and only done by a few labs, even here in the States.
I also have idiopathic small fiber PN. I beat up my neurologist until he agreed to do the test, which confirmed his diagnosis. As all of us are to an extent, I was desperate to find a treatable condition.
Unfortunately, nothing I have tried, including all the usual meds, helps very much, other than manipulating the environment that my feet live in.
What has been your experience?
Thanks
Jeff
Hi @jeffrapp thank you so much for your inputs. Sincerely appreciated. Also sorry for what you have been going through. I have avoided using any pain killers and prescribed medications but have used PEA cream, cbd cream, penetrix roll on, different kind of supplements including supplements and minerals as part of Protocol 525. While the burning pain in my soles has somewhat subsided, I have lately experienced severe numbness which has limited my ability to walk. Despite my limitation to walk, I jog every day for at least 10 kilometers. Be safe and protected
Hello @cue, Welcome to Connect. @banksnc49, @arnrob, @montanagary, and @judypall have discussed acupuncture or dry needling in another discussion and may be able to share their experience with you.
Are you able to share a little more about your symptoms or what you are currently using to treat your symptoms?
Create an account to connect with other patients and caregivers like you. Ask questions, get answers, and give and get support. Also follow blogs from Mayo Clinic experts.
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@20highlander14, My acupuncturist, who seems to be very knowledgeable, says he can help with pain but not fix the root cause which in my case is spinal stenosis.
@20highlander14 Check out the following link… https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067
In that reading from Mayo they do note that Acupuncture could help, while Mayo does not mention Chiropractic.. there are all sorts of Chiropractic websites that say all sorts of things… That is the problem.. Can you believe any of them? . One needs to find Credible tests done in which measurable results can be defined.. My opinion of Chiropractic is not positive.. I live in Iowa where in Davenport, IA there is a bronze plaque that marks where the first Chiropractic adjustment was done to improve the hearing of a patient.. In that town there was/is the Palmer School of Chiropractic.. They owned the Radio Station and they advertised a lot back in my younger years.. K
Hello @20highlander14, I would like to add my welcome to Connect along with @californialen, @ken82 and other members. I feel the same as @ken82 on chiropractors being helpful for neuropathy but that's just my opinion. You may find another discussion on Connect helpful if you have neuropathy caused by nerve compression and spine related issues.
Myofascial Release Therapy (MFR) for treating compression and pain: https://connect.mayoclinic.org/discussion/myofascial-release-therapy-mfr-for-treating-compression-and-pain/
@greeneyes55, @artscaping and others that have experience with acupuncture may have thoughts or suggestions to share also.
@20highlander14, are you able to share a little more about your neuropathy diagnosis and any tests you've had?
Hi @johnbishop john I am from Pakistan. You guys are lucky to be living in the States. It is a real challenge finding a physiotherapist trained at MFR therapy in countries like mine. Based on MRI reports i was initially told by a Malayasia-based neurologist and subsequently by a Bangkok-based Neurologist in August 2017 that the burning pain and numbness at the bottom of my feet was the result of my lumbar spinal stenosis
triggered by degenerative disc disease until I visited Mayo Clinic in Rochester in June 2018 where they blamed it on small fiber neuropathy despite the fact that all the tests were negative for small fiber neuropathy. That is why they called it idiopathic. So, it would not have harmed me trying MFR therapy for my lumbar, if we had trained MFR experts in Pakistan. I thank you John and everyone in this group for supporting each others and sharing experiences.
Hi @nukhan
You say that "all the tests were negative for small fiber PN". Did you have a skin biopsy of the foot?
Hi @jeffrapp while I had all the blood work, xray, CT scan, nerve conduction, MRI, EMG and bone density, the team at Mayo didn't advise me the Skin biopsy. Based on their experience, they were quite confident that it was small fiber neuropathy.
Hi @nukhan
Yes, that approach is not unusual. The skin biopsy will almost certainly confirm the diagnosis that has already been made, and is therefore probably not necessary, when dealing with experienced neurologists. It is also expensive, and only done by a few labs, even here in the States.
I also have idiopathic small fiber PN. I beat up my neurologist until he agreed to do the test, which confirmed his diagnosis. As all of us are to an extent, I was desperate to find a treatable condition.
Unfortunately, nothing I have tried, including all the usual meds, helps very much, other than manipulating the environment that my feet live in.
What has been your experience?
Thanks
Jeff
Hi @jeffrapp thank you so much for your inputs. Sincerely appreciated. Also sorry for what you have been going through. I have avoided using any pain killers and prescribed medications but have used PEA cream, cbd cream, penetrix roll on, different kind of supplements including supplements and minerals as part of Protocol 525. While the burning pain in my soles has somewhat subsided, I have lately experienced severe numbness which has limited my ability to walk. Despite my limitation to walk, I jog every day for at least 10 kilometers. Be safe and protected
I have small fiber neuropathy and I'm going to try acupuncture. Has anyone had success with acupuncture for neuropathy?
Hello @cue, Welcome to Connect. @banksnc49, @arnrob, @montanagary, and @judypall have discussed acupuncture or dry needling in another discussion and may be able to share their experience with you.
Are you able to share a little more about your symptoms or what you are currently using to treat your symptoms?
I had acupuncture for almost 6 months. It did help but could not help me enough to continue. Awesome but not financially affordable any longer.
Did you have acupuncture weekly or monthly? Thanks. cue