Acoustic Neuroma: Balance issues years after treatment

Posted by mollybrownbeard @mollybrownbeard, Aug 9 5:35pm

Acoustic Neuroma in 2012.
I had radiation surgery in 2014.
In 2018 I was unable to balance well enough to walk.
***** Anyone else go through this?
Not being able to balance well enough to walk has been a total nightmare!

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@mollybrownbeard, I can imagine that having persistent balance issues years after treatment is a nightmare. Can you share a bit more? Has your neurosurgeon been able to explain how treatment may have affected balance or the vestibular nerve? Have you worked with a physical therapist for vestibular rehabilitation?

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I can relate to your balance challenges. While I had GammaKnife treatment for my two acoustic neuromas 17 years ago, I didn’t have balance problems until a year ago. I’m grateful for that stability period, however, I went from aerobics and line dancing five days a week to chair exercises only and using a rollator with every step I take. My doctor explained years ago that the acoustic neuromas were slow growing—but they do grow, despite treatment.

Unfortunately physical therapy did not help much. So I just make the best of each day and take great care not to fall.

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