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Acoustic Neuroma: What treatment options and specialists?

Posted by hopemay @hopemay, Jun 6, 2024

Hi,
A young family member is diagnosed with Acoustic Neuroma (AN).
The Tumor size is 2CM.

Please let me know your thoughts:

1. What type of surgery could be the best to preserve hearing, facial nerves and balancing/headaches. There are 3 options in surgery:
A. Translabyrinthine Approach
B. Retrosigmoid Approach
C. Middle Fossa Approach

2. We are not seeing Gama as an option because of young age. Please
let me know your thoughts.

3. Is headache always a comes surgery and stay in all cases ?

4. Any suggestions for Surgeons & Hospitals in CA ?

5. How long could we wait for surgery, since it is 2 CM ? We want to explore every opportunity, including Mayo. The issue is the logistic and insurance limitations.

Thank you for your support.

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cinlu | @cinlu | Dec 25, 2024
In reply to @hopemay "Hi, Thank you for your support. Any thoughts on Retro sigmoid AN surgery and surgeon not..." + (show)
@hopemay

Hi,

Thank you for your support.

Any thoughts on Retro sigmoid AN surgery and surgeon not removing the entire tumor to save facial nerves ?
After 3-3.5 months after Retro sigmoid, MRI is showing approximately 7mm AN tumor left. Surgeon had mentioned after surgery that they had to leave some to save the facial nerves. They said it will be so small that it will not visible. But MRI is shows it (7mm). This can not be growth, because AN grows very slow. This is left over, should we be concerned ? MRI has been forwarded to the surgeon and we are in waiting phase.

Please let me know your thoughts. Thank you.

Jump to this post

Thank you for posting this. I am going to have a 2 x 1.9 cm acoustic neuroma removed and grateful to learn something more could be researched and ask my neurologist if this could be an option.

REPLY
1 reply
hopemay | @hopemay | 4 days ago
In reply to @cinlu "Thank you for posting this. I am going to have a 2 x 1.9 cm acoustic..." + (show)
@cinlu

Thank you for posting this. I am going to have a 2 x 1.9 cm acoustic neuroma removed and grateful to learn something more could be researched and ask my neurologist if this could be an option.

Jump to this post

@cinlu, Well wishes and please post progress. Thanks.

REPLY
tam2lam | @tam2lam | 3 days ago

Check out a anausa.org. Lots of good info available there.

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