Anyone have abdominal pain with an indwelling urinary catheter?

Posted by gordy6898p @gordy6898p, May 20, 2023

Anybody here an indwelling urinary catheter?....

My "Foley" catherter is exchanged each month by myself, which the VA allows (I'm an Air Force veteran).

I flush it daily with a saline solution. If not flushed routinely, it plugs within a couple weeks.

My problem...

I'm awakened each night by lower abdominal pain after sleeping only 4 or 5 hours. I'd put pain level at about 5 on a scale of 1-10.

It's only a problem at night. Once I'm up and moving around the pain disappears, or falls to less than level 1 within 5 or 10 minutes.

However, any time I push against my lower abdomen it's quite painful... about level 5.

In the past six months, the VA has scanned with ultrasound, Xrays, MRI, and recently "CT of the abdomen and pelvis with intravenous constrast."

The results of this latest test being that my liver, kisneys, prostate, and intestines are functioning normally.

Seems to me that rules out everything else but my bladder as the pain source.

The CT exam mentions "The bladder wall demonstrates diffuse bladder wall thickening and prominence of the superficial vascular structures sugesting inflammation."

The "...suggesting inflammation." part leads me to think that is the most likely source of pain. Perhaps there's an infection.
If so, what can be done?

Doctors at the VA hospital in Madison, Wisconsin seem to be baffled by the source... weird!

Anybody here also having a similar problem?

Interested in more discussions like this? Go to the Bladder Conditions Support Group.

Profile picture for steve74 @steve74

Hello all, thank you for sharing your thoughts.For over two months now, I have been dealing with abdominal pain and dry heaving. I have had a few good days when it doesn't seem so bad but most days I am retching several times a day with abdominal discomfort throughout the day. I never actually vomit, just dry heaving. It can happen in the middle of the night, waking me up from sleep, just after I wake in the morning, or in the evening. Sometimes it happens during the day as well but generally I don't have the retching during the day. My bowel movements have been mostly normal and regular but I'm burping a lot before / after the retching. I haven't lost my appetite entirely but I'm eating less just because of not feeling well and have lost 15 pounds in the last two months without trying to loose weight. I do not drink alcohol or smoke. I have been tracking what I'm eating and making sure not to eat close to bed time but I'm not seeing anything that could be a trigger.I have been seeing a GI doctor and he has ordered every test he can think of but all of the results come back normal. I have had an endoscopy, colonoscopy, biopsies, ultrasound, abdominal CT scans, MRI, and all sorts of blood tests. Nothing the Dr can see that he thinks would cause my symptoms but something is clearly wrong. Dr says there is no sign of stomach or colon cancer. Negative for H Pylori, Porphyria and Celiac. Blood tests all show normal function levels for liver, kidney, etc. The only things they did find was fatty liver, a lesion on liver (less than 1 cm) and abdominal aortic aneurysm but in each case Dr said they were minor and not at a point to cause concern. Tums, Pepcid, and other OTC acid reducers don't help.At this point Dr, is saying he can try to prescribe nausea meds to see if that helps but I feel like he is sort of giving up on finding a cause and just offering to treat the symptoms. I have been trying to get appointments with other Dr for second opinion but it takes months to get an appointment.I don't know if there is any other tests I should ask for or what to try next. Thanks for sharing your thoughts.

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You might want to consider a Caster oil pack put on your stomach.
Look up Barbara Oneill. Shes holistic, disingenuously ostricized, yet highly intelligent, profusely well read and effective with many remedies.
Search her with gut/abdominal issues.
Contrary to the criticism, shes outstanding and knows the bodys ways of healing itself.

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Profile picture for steve74 @steve74

Hello all, thank you for sharing your thoughts.For over two months now, I have been dealing with abdominal pain and dry heaving. I have had a few good days when it doesn't seem so bad but most days I am retching several times a day with abdominal discomfort throughout the day. I never actually vomit, just dry heaving. It can happen in the middle of the night, waking me up from sleep, just after I wake in the morning, or in the evening. Sometimes it happens during the day as well but generally I don't have the retching during the day. My bowel movements have been mostly normal and regular but I'm burping a lot before / after the retching. I haven't lost my appetite entirely but I'm eating less just because of not feeling well and have lost 15 pounds in the last two months without trying to loose weight. I do not drink alcohol or smoke. I have been tracking what I'm eating and making sure not to eat close to bed time but I'm not seeing anything that could be a trigger.I have been seeing a GI doctor and he has ordered every test he can think of but all of the results come back normal. I have had an endoscopy, colonoscopy, biopsies, ultrasound, abdominal CT scans, MRI, and all sorts of blood tests. Nothing the Dr can see that he thinks would cause my symptoms but something is clearly wrong. Dr says there is no sign of stomach or colon cancer. Negative for H Pylori, Porphyria and Celiac. Blood tests all show normal function levels for liver, kidney, etc. The only things they did find was fatty liver, a lesion on liver (less than 1 cm) and abdominal aortic aneurysm but in each case Dr said they were minor and not at a point to cause concern. Tums, Pepcid, and other OTC acid reducers don't help.At this point Dr, is saying he can try to prescribe nausea meds to see if that helps but I feel like he is sort of giving up on finding a cause and just offering to treat the symptoms. I have been trying to get appointments with other Dr for second opinion but it takes months to get an appointment.I don't know if there is any other tests I should ask for or what to try next. Thanks for sharing your thoughts.

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Have you tried food allergy testing? After years of ulcers esophagitis, Linx surgery etc. turned out I was allergic to most foods I was eating. Had Linx removed and now if I avoid the foods I feel better!

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I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

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Profile picture for shelleyW @shelleyw

I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

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Wow. You have had a lot to deal with. So sorry. Have you gone to a gi Dr. Had any gi testing?barium swallow? Ph impedance testing? Motility testing? If I was in your position even though you don’t want to do to Dr. I would 100 percent go see a gi Dr! Give you peace of mind as well as a diagnosis. 😊

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Profile picture for shelleyW @shelleyw

I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

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Also a ct scan? Or Cta scan? They sound necessary. At this point.

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Profile picture for graceym1 @graceym1

Wow. You have had a lot to deal with. So sorry. Have you gone to a gi Dr. Had any gi testing?barium swallow? Ph impedance testing? Motility testing? If I was in your position even though you don’t want to do to Dr. I would 100 percent go see a gi Dr! Give you peace of mind as well as a diagnosis. 😊

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graceym1,
Yes, I have had all the tests you mentioned. I was with the same GI for 17 years: celiac biopsy, CIC, chronic idiopathic constipation, fecal impactions, small bowel partial obstructions, 2 resolved by me quit eating solids, using meal replacement protein shakes (my daughter is very knowledgeable about which is best for me, or I never would have used them). The 3rd one landed me in ER, ICU, gastric nasal tube for 3 days. Then 3 anal blockages that required digital removal, by me. So, I still don't eat a lot of solid foods, and I have to take miralax every day.
I don't ever believe that a Dr. can give me peace of mind. Just the thought of it makes me break down sobbing or LOL. I have had CT's, MRI's, biopsies, x-rays every 1-2 months, always showing I have heavy fecal load in large intestines, I guess that means I am quite literally full of 💩💩. Thanx, for your suggestions. Shelley

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Profile picture for shelleyW @shelleyw

graceym1,
Yes, I have had all the tests you mentioned. I was with the same GI for 17 years: celiac biopsy, CIC, chronic idiopathic constipation, fecal impactions, small bowel partial obstructions, 2 resolved by me quit eating solids, using meal replacement protein shakes (my daughter is very knowledgeable about which is best for me, or I never would have used them). The 3rd one landed me in ER, ICU, gastric nasal tube for 3 days. Then 3 anal blockages that required digital removal, by me. So, I still don't eat a lot of solid foods, and I have to take miralax every day.
I don't ever believe that a Dr. can give me peace of mind. Just the thought of it makes me break down sobbing or LOL. I have had CT's, MRI's, biopsies, x-rays every 1-2 months, always showing I have heavy fecal load in large intestines, I guess that means I am quite literally full of 💩💩. Thanx, for your suggestions. Shelley

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You have certainly been through alot. I’m sorry. I’m glad you have a knowledgeable daughter that helps you! Have you been to nyu or Columbia Presbyterian in nyc? Or Mayo Clinic? UVA? What are drs saying you have exactly? And why can’t they fix it?

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Profile picture for shelleyW @shelleyw

I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

Jump to this post

graceym1,
My parathyroid glands are over worked and under paid, 😱, I have slightly elevated calcium, has been trending up for 5+- years. I had secondary HPTH diagnosed in 2008, due to malabsorption... I have severely damaged villi in my intestines due to lifelong celiac disease, I didn't know it, because I am have been asymptomatic or have the opposite symptoms. This is also a surgery like yours... I could wait, and continue with a declining QoL, or get it done. My body systems are overwhelmed, with several problems, it has no fight left, so every time I turn around I get a different, more weird and serious diagnosis. I, like the other's will want to know what your decision is. Good luck. ShelleyW

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Profile picture for shelleyW @shelleyw

graceym1,
Yes, I have had all the tests you mentioned. I was with the same GI for 17 years: celiac biopsy, CIC, chronic idiopathic constipation, fecal impactions, small bowel partial obstructions, 2 resolved by me quit eating solids, using meal replacement protein shakes (my daughter is very knowledgeable about which is best for me, or I never would have used them). The 3rd one landed me in ER, ICU, gastric nasal tube for 3 days. Then 3 anal blockages that required digital removal, by me. So, I still don't eat a lot of solid foods, and I have to take miralax every day.
I don't ever believe that a Dr. can give me peace of mind. Just the thought of it makes me break down sobbing or LOL. I have had CT's, MRI's, biopsies, x-rays every 1-2 months, always showing I have heavy fecal load in large intestines, I guess that means I am quite literally full of 💩💩. Thanx, for your suggestions. Shelley

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In my experience Miralax gives me a lot of gas and cramping, I switched to colace

REPLY
Profile picture for shelleyW @shelleyw

I am cramping in abdomen A LOT more and very very painful. I'm female so I know too much about cramps from onset of puberty, I wanted to curl up and die, 3 days every stinkin month. Gave birth c-section of twins, they gave me petocin, afterwards to help make my uterus cramp, mine was stuck in "open " mode and I was hemorrhaging orange size clots.
Severe cramping is also a sign of a potential intestinal obstruction forming.
Any ideas on how to tell what is causing my severe cramps and how to know if I should go to doctor would be very much appreciated.
I have chronic 💩💩 issues, longggggg term. The severe cramping started about a year ago with a partial small bowel obstruction forming. I DO NOT want to go to the doctor, only as last resort.
I'm in diarrhea mode now, nothing new for me, and it doesn't mean I don't have any impactions. Cramps are wrapping around my left side to mid-lower back. I am nauseous for no apparent reasons throughout my life, but the nausea is picking up too. I've not eaten any new food, no new medication. I'm nibble on crackers and small sips of 7-UP. Water makes me more nauseous. HELP thanx ShelleyW

Jump to this post

Are you constipated even with daily Miralax? The dose can be adjusted upward quite a bit to get the right amount. I have been taking Miralax mixed with Metamucil in a 3/4:1/4 ratio. The metamucil adds some bulk to the stool helping it move along. I use generics for both. I wonder if you have a redundant (extra long and loopy). That makes too much water be absorbed from the stool resulting in consipation. Sometimes surgery to remove some colon is advised. I assume you are on a celiac diet? I have a similar problem with CC and it’s miserable. So sorry you’re dealing with this! I have times where I get so blocked up i take 8 caps of miralax over 2-3 hrs and that clears it. It’s like doing a colonoscopy prep mini style.

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