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8 weeks in feeling better then relapse ??

Posted by bmiller57 @bmiller57, Jul 2, 2020

after 8 weeks of treatment with the big 3 started feeling better was able to get out and tinker in my shop a little at 10 weeks i am having severe symptoms again is this a normal ??

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Mentor
Sue, Volunteer Mentor | @sueinmn | Jul 2, 2020

@typical. What do you mean by severe symptoms? If it is fatigue & the same cough as you had before, it is typical. The meds themselves can cause fatigue. If it is fever and/or a painful cough, or somehow seems different to you, it is time for a call to your doc - before the holiday weekend. There is a possibility that one or another of the meds is causing your problem. Also consider whether there is any possibility you were exposed to Covid-19, because they will ask you on the phone.
We always try to tell people "MAC is slow to grow and slow to go" - my symptoms were up and down the entire 18 months I was on meds, but never returned to the severity I had before treatment.
Good luck, and let us know what you learn.
Sue

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1 reply
bmiller57 | @bmiller57 | Jul 2, 2020
In reply to @sueinmn "@typical. What do you mean by severe symptoms? If it is fatigue & the same cough..." + (show)
@sueinmn

@typical. What do you mean by severe symptoms? If it is fatigue & the same cough as you had before, it is typical. The meds themselves can cause fatigue. If it is fever and/or a painful cough, or somehow seems different to you, it is time for a call to your doc - before the holiday weekend. There is a possibility that one or another of the meds is causing your problem. Also consider whether there is any possibility you were exposed to Covid-19, because they will ask you on the phone.
We always try to tell people "MAC is slow to grow and slow to go" - my symptoms were up and down the entire 18 months I was on meds, but never returned to the severity I had before treatment.
Good luck, and let us know what you learn.
Sue

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thank you for the reply no my symptoms are not worse but same as in the begining and today very minimal symptoms hard to deal with this rollor coaster ride i am on

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Mentor
Sue, Volunteer Mentor | @sueinmn | Jul 2, 2020

@bmiller57 I love the description of the journey as a roller coaster - it truly is one. After a few months on the meds, I learned certain things made me feel worse - getting overly tired, any little digestive upset or food that did not agree, failing to drink a lot of water... Maybe pay attention to what is going on in your life and diet just before the downside of the "roller coaster"?
Sue

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