61 years old, very healthy and active, past competitive runner

Posted by lisawa @lisawa, Oct 29 2:44pm

I am 61, very healthy, past competitive distance runner that did not have consistent periods until in my 20’s during prime bone growth. Subsequently , my tbsscores continue to drop. L1-L4 in 2019 ( -2.3) now 2024( -2.8) . Left hip 2019 (-2.0) now 2024 (-2.5). Right hip 2019 (-2.0) now (-2.1) . Same dexa machine. Dr said I was mod/ high risk of vertebral fracture and wants me to consider Tymlos. I am very scared to start any traditional therapy because of side effects, cancer risk, and rebound bone loss. What does this look like in 5 years? 10 years? I have 2 grandbabies on the way and plan to be super active with them! Please share your knowledge, wisdom and experience. Thanks

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Hello, At 63, I suffered 3 spinal compression fractures. I was a competitive distance runner too who had amenorrhea until I suffered a stress fracture at the neck of the femur ( overuse). As it healed, my periods returned. I slowly returned to distance running, but the lack of adequate nutrition for the intense training probably started my bone loss. I reluctantly began Evenity, followed by Reclast. My spinal T-scores went from -3.7 to -2.9 on Evenity. My femur necks showed little change on the medication. The right was -2.6 (slightly improved to -2.5) and the left ( the previous stress fracture, was -1.8 (slightly improved to -1.6). I had very few issues with either medication. The next bone scan will be in about 2 years. Currently, I still work out, lift light weights, walk, and bike….but I don’t lift the little grandchildren. I don’t know what the future holds in terms of other medications after Reclast, but I guess I’ll have to prepare to cross that bridge ‘before’ I come to it.

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@shamrock24

Hello, At 63, I suffered 3 spinal compression fractures. I was a competitive distance runner too who had amenorrhea until I suffered a stress fracture at the neck of the femur ( overuse). As it healed, my periods returned. I slowly returned to distance running, but the lack of adequate nutrition for the intense training probably started my bone loss. I reluctantly began Evenity, followed by Reclast. My spinal T-scores went from -3.7 to -2.9 on Evenity. My femur necks showed little change on the medication. The right was -2.6 (slightly improved to -2.5) and the left ( the previous stress fracture, was -1.8 (slightly improved to -1.6). I had very few issues with either medication. The next bone scan will be in about 2 years. Currently, I still work out, lift light weights, walk, and bike….but I don’t lift the little grandchildren. I don’t know what the future holds in terms of other medications after Reclast, but I guess I’ll have to prepare to cross that bridge ‘before’ I come to it.

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@shamrock24 I have been told that fractures make my DEXA look better than it really is for the vertebrae I fractures. Is that why your left femur neck looks good?

I am most nervous about fracturing my femur neck. Did you require surgery?

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@shamrock24

Hello, At 63, I suffered 3 spinal compression fractures. I was a competitive distance runner too who had amenorrhea until I suffered a stress fracture at the neck of the femur ( overuse). As it healed, my periods returned. I slowly returned to distance running, but the lack of adequate nutrition for the intense training probably started my bone loss. I reluctantly began Evenity, followed by Reclast. My spinal T-scores went from -3.7 to -2.9 on Evenity. My femur necks showed little change on the medication. The right was -2.6 (slightly improved to -2.5) and the left ( the previous stress fracture, was -1.8 (slightly improved to -1.6). I had very few issues with either medication. The next bone scan will be in about 2 years. Currently, I still work out, lift light weights, walk, and bike….but I don’t lift the little grandchildren. I don’t know what the future holds in terms of other medications after Reclast, but I guess I’ll have to prepare to cross that bridge ‘before’ I come to it.

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Thank you for sharing. It is helpful beyond measure. Feels lonely until you hear of others going through similar or even worse. What a journey you have been on. I know not being able to run is a grief in itself. I hope your next scan show improvements!

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@windyshores

@shamrock24 I have been told that fractures make my DEXA look better than it really is for the vertebrae I fractures. Is that why your left femur neck looks good?

I am most nervous about fracturing my femur neck. Did you require surgery?

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I’m not sure, but my thoughts were that it had healed well in college! I also was fitted for orthotics after the fracture because I had had an avulsion of the hamstring ( right one) in high school. I thought they were structural issues, not bone. The stress fracture of the neck of the femur was not painful at all, but my gait (walking) was awful until they put me on crutches. No surgery, but they told me if it happened again I would need surgery.

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I feel the same as you, I'm a healthy 62 year old and I am not a big fan of any type of medication if I can avoid it. I'm particularly nervous about medication that hasn't been used for a long time (as in over a decade) or if there is even a remote possibility of cancer. I just started Tymlos though because I want to remain active for as long as possible. Hoping I am making the right decision!

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@windyshores

I wonder why the nurse said to avoid Forteo again. Can you get a second opinion?

I have 7 spinal fractures and my femur neck is still -3.7. Tymlos got my spine from -3.6 to -2.5 and hip from -3.3 to -2.9. I did Tymlos then 4 months Evenity. If I were you I would do Tymlos then Evenity.

Evenity is not like Prolia in terms of rebound. Prolia stands alone in that regard. We will naturally lose bone after all the other meds but not via a rebound like Prolia's. Prolia suppresses osteoclasts and they come rushing back in large numbers: that is the mechanism for rebound. No matter what you take, as protocols stand now, you will need a bisphosphonate. Ugh!

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Interesting enough, a second course of Forteo has been approved by Blue Cross, and Evenity is still in holding pattern for review if they will cover it. Likely a 3 month wait. I think I will just go ahead with Forteo and see what happens. Can't afford to wait as my spine is spasmed twice now, and that is an indicator for me of compression fracture risk. My endocrinologist said I was beyond her scope of practice and referred me to someone in Vancouver who is hard to reach and does not follow up with pharmacy or request for bone density testing, resulting a year delay from when I was told I would start breaking again. Very upsetting. After 13 fractures, one tends to have medical PTSD. and little faith.

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