1. < Bladder Cancer

Any other females here with bladder cancer in their 50s?

Posted by talltxlady @talltxlady, Apr 25, 2023

Saying hello as a new member. Sometimes it's difficult to find info for females with bladder cancer, and sometimes it would be nice to have others to connect with.
Start BCG again in May. Have been off of it since December. It has been so nice not to have to think about any of that for a while. Starting to get nervous though, with bcg beginning again very soon. Praying the cancer stays away.
I think I'm the youngest one where I'm being treated. Any other females here with bladder cancer in their 50's?

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jaxfl | @jaxfl | May 25 7:00pm

Take it easy! One day at a time!

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jowilliams1 | @jowilliams1 | May 25 2:51pm

So glad to hear it went well. Yes, it's a big surgery for sure. Take it easy and rest up. At least that part is over now.

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annepark | @annepark | May 25 12:27pm
In reply to @jowilliams1 "I know you’re not likely to respond for a while, but wanted you to know I've..." + (show)
@jowilliams1

I know you’re not likely to respond for a while, but wanted you to know I've been thinking of you and your surgery today and said a prayer earlier. I hope everything is going well. All my best to you!! Please let me know how you are feeling.

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Hi . I’m believe the RC went as expected . I’m being discharged today with some in home nursing next week. It’s been rough ride . Happy to be going home and I’m aware that I’ve still lots to learn. I hope you are doing well .

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jowilliams1 | @jowilliams1 | May 21 3:47pm
In reply to @annepark "Hi Jo Thanks for sharing that information . I completely understand your decision to go ahead..." + (show)
@annepark

Hi Jo

Thanks for sharing that information . I completely understand your decision to go ahead with chemo before the RC. I’ve decided to go ahead with the RC first . I just want that part over with . My surgery is scheduled for the 21st May.

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I know you’re not likely to respond for a while, but wanted you to know I've been thinking of you and your surgery today and said a prayer earlier. I hope everything is going well. All my best to you!! Please let me know how you are feeling.

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1 reply
archsngel51 | @archsngel51 | May 11 12:59pm

Im 74 and have bladder cancer.
I will have an ileal conduit surgery on July 9th.
The surgeon went over 3 options. The "neo bladder, the "Indiana pouch" and the ileal conduit. Of the 3 the conduit fits my busy schedule

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annepark | @annepark | May 10 9:16am
In reply to @jowilliams1 "Of course! My oncologist and surgeon agreed that I should have chemo prior to the surgery...." + (show)
@jowilliams1

Of course! My oncologist and surgeon agreed that I should have chemo prior to the surgery. I think that was to see if the chemo could shrink the tumor and hopefully also damage any other cancer cells in lymph nodes or anywhere else they couldn't see. I had chemo for three months (July-Sept), took a month off for my body to recover some from it (Oct) and get another CT scan and then had the RC with a neobladder "installed" on 11/7. They could tell from the tissue that was removed that the chemo had worked. There was damage to that tissue.

I'm personally glad that I did it before the surgery. The surgery recovery is pretty long so I was glad I already had the chemo behind me and could just concentrate on healing instead of also having to look towards chemo. The chemo I had was cisplatin and gemcitabine. It wasn't easy, but I just tried to concentrate on getting through the chemo first and then deal with the surgery later. One day at a time.

Is your oncologist suggesting chemo first?

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Hi Jo

Thanks for sharing that information . I completely understand your decision to go ahead with chemo before the RC. I’ve decided to go ahead with the RC first . I just want that part over with . My surgery is scheduled for the 21st May.

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1 reply
Moderator
Colleen Young, Connect Director | @colleenyoung | May 8 12:13pm
In reply to @jcandersen9415 "Hello! I’m 59 and was diagnosed last year. I’m trying to understand it all. My Dr..." + (show)
@jcandersen9415

Hello! I’m 59 and was diagnosed last year. I’m trying to understand it all. My Dr isn’t very communicative. He’s matter of fact, this is what needs to be done and then I move on until my next appointment. Ive had two turbts and had the 6 weeks of weekly chemo treatments, then my next visit, I was clear. But the next 3 month check, the tumors were back. They described it like weeds in a garden. I’m trying not to freak out and get ahead of myself but am trying to read what I can about a healthy lifestyle.

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@jcandersen9415, pulling the weeds when they show up in the garden is a good analogy. But it's still hard news to get when you learn that a tumor has reappeared.

What is next? Will you have more treatment?

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jowilliams1 | @jowilliams1 | May 7 4:37pm
In reply to @hmmm "I also have a neobladder. I had the RC surgery on February 19th. How are you..." + (show)
@hmmm

I also have a neobladder. I had the RC surgery on February 19th. How are you doing as far as incontinence? It has only been 2.5 months for me.

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Today marks 6 months exactly since my surgery. I'm doing much better. I always wear a pad when I go out but that's just because I'm a little nervous without it. At times I'll have just a little leakage still but I can sneeze and cough without a problem now. Yay!!! I feel very fortunate for this new bladder. I've had no problems at all outside of the initial incontinence. How are things going for you?

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tanya | @hmmm | May 7 1:21pm
In reply to @jowilliams1 "I'm glad I went that route. It takes a while for things to work like they..." + (show)
@jowilliams1

I'm glad I went that route. It takes a while for things to work like they should but I knew that going in so I'm practicing my patience. I am dealing with control issues but my surgeon is optimistic that within the next few months I should have that under control again.

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I also have a neobladder. I had the RC surgery on February 19th. How are you doing as far as incontinence? It has only been 2.5 months for me.

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1 reply
annepark | @annepark | May 7 9:04am

I’m wondering what I should pack for the hospital stay . Nightdresses or pajamas , underwear etc …
Also how long before one is up and moving , brushing teeth for example and showering etc ?
As always any advice is much appreciated .

Lesley

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