3 week pain clinic

Posted by ginnyodie @ginnyodie, Oct 12, 2019

Has anyone gone through the 3 week pain clinic? It was recommended for Gastroparesis. It is also $50,000. BCBS turned it down as medically unnecessary. We have filed an appeal. Just wondering if it’s worth it?

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@cfswisc

Thank you so much for that very informative really, it is super helpful. i guess one of my concerns is that if i overdo it, push myself, and don't stay within my "envelope," i tend to crash badly afterwards, and sometimes i don't even get back to my original baseline, but get to a new worse baseline. it takes me weeks to recover from traveling. So I'm concerned how 3 weeks of an intense program (plus travel, I live in the upper Midwest but not Minnesota) would leave me feeling. I don't think i need a lot of education about CFS, as I have the good fortune to have a great PCP who takes my concerns seriously, and was diagnosed 10 years ago. She has been willing to try lots of different potential therapies, and i have seen a psychologist as well. I know there is no cure, but i would be willing to try anything to improve my quality of life. I'll talk to my doc and see if she knows anything about the program (I think they need a referral, right?). Your reply was super helpful in giving me a better idea of what the program is about. Thank you so much.

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I understand about crashing, happens to me all the time if/when I over do it (and half the time I don't even think I'm over-doing something until later when my body tells me afterwards that I did it again, ha!) And I get about how long it'll take your body to recover when doing something as intense (and lengthy - as in 3 weeks) for the PRC program. You'll have to decide if the 'cost' is worth it for you to attend this program. Definitely speak with your doctor about it. And yes, you will need a doctor referral to be admitted into the PRC program (at least that was the case years ago when I went to it). If you are at the point in your life that you are "willing to try anything to improve my quality of life", maybe you just gave yourself the answer you were looking for as to whether you should try and get referred into it. That old childhood saying of "you won't know until you try" comes to mind right now, ha! Good luck with your health and future!

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