1. < Prostate Cancer

3 month follow up

Posted by bdc1677 @bdc1677, Jan 9 6:26pm

I had my prostate out October 3rd. My three month PSA text came back at .06. Good, but not zero. I realize anything under .1 is considered in remission. I will have it redone in three months.

What was everyone else three and six month PSA?

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heavyphil | @heavyphil | 2 days ago
In reply to @heavyphil "This is what happens when I read something out of context. I saw .75 to 3.75..." + (show)
@heavyphil

This is what happens when I read something out of context. I saw .75 to 3.75 for PSA and erroneously thought they were post- treatment numbers….my bad!
Your actual numbers seem pretty damn good then. Still it amazes me just how relative everything is in life: My PSA 5 yrs after surgery was .2 (actually .18) so I needed more treatment. Yours is .22 AFTER treatment and you’re doing great -🤯. Is it any wonder that men go insane from all these numbers??!!

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BTW, I am about 6 weeks post radiation and have 2 more weeks on Orgovyx. Feel great.
No “numbers” yet for me - that’ll come at the 3 month mark 🤞. Thanks for asking!

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jc76 | @jc76 | 2 days ago

@heavyphil
No problem. I posted some time ago the same thing about numbers and giving numbers below one .1 that different labs can or do.

I can only post what Mayo Jacksonville uses for what they consider non detectable and that the number I posted from my Mayo PCP is .1 as below that they consider non detectable. That is not what I am learning other labs can do or non dectecable numbers. So I am careful I mentoned only my experience with Mayo Jacksonville and their non detectable number guidance the give.

It appears many other laps go much lower in giving PSA numbers. I think, and just my opinion, it is a far greater need to have those lower numbers sensitivity for those who have had their prostate removed versus those who still have our prostate and thus will have PSA levels (and normal to have) to be above non detectable levels.

I agree with my Mayo PCP and R/O it is, at least for me, my PSA goal of below one and not to have an ongoing rise in PSA numbers on a consistent over time basis.

Take care!

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jc76 | @jc76 | 2 days ago
In reply to @retireditguy "@manutebol -- Thanks for your reply! I really do appreciate it. I did discuss this topic..." + (show)
@retireditguy

@manutebol -- Thanks for your reply! I really do appreciate it. I did discuss this topic with my visits with the Mayo staff urologists at 3 month and 6 month checkups. A couple of points are (I believe) key here: first, Mayo didn't specify the machine. They just gave me an order for a standard psa test. My local lab happened to run it on 2 different machines which provided the difference in both results. But in both cases, the psa was at the bottom of each machines respective calibration scale. So I don't think there's really any significance to the differences. Second, both staff urologists I saw were quite definitive that staying below .2 is the goal and there really isn't anything to do unless and until that number is reached. Speaking only for myself, I'm very comfortable following their guidance since Mayo is a CCOE and I've received outstanding care from them so far. I do understand your comment regarding ".099" and I think it's a thoughtful and precise analysis. But in this case I'm also relying on the experience of my Mayo care team to help balance between what I'd characterize as overthinking the numbers (which I'm prone to do) versus prudent care. Could I be wrong and it bite me in the ass; yes it could. But I'm not ignoring it and I will be getting another psa test in 3 months as scheduled. For now I think that's enough, but more importantly my care team at Mayo thinks that's enough. All that said, thanks again for your response and I really do appreciate it.

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@retireditguy
You are in good hands at Mayo. Which one are you going to?

I see you mentioned the Mayo Team. I go to Mayo Jacksonville and I posts all the time about Mayo care using the team concept. I trust my Mayo team especially my Mayo PCP.

But it was my Mayo PCP that suggested getting second opinions which I did. But my final consulatation was with my Mayo PCP going over all the information we learned and decided on what both of us thought was best for me.

I can't praised Mayo Clinic anymore that I do expecially the outstanding PCP I have.

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1 reply
retireditguy | @retireditguy | 2 days ago
In reply to @jc76 "@retireditguy You are in good hands at Mayo. Which one are you going to? I see..." + (show)
@jc76

@retireditguy
You are in good hands at Mayo. Which one are you going to?

I see you mentioned the Mayo Team. I go to Mayo Jacksonville and I posts all the time about Mayo care using the team concept. I trust my Mayo team especially my Mayo PCP.

But it was my Mayo PCP that suggested getting second opinions which I did. But my final consulatation was with my Mayo PCP going over all the information we learned and decided on what both of us thought was best for me.

I can't praised Mayo Clinic anymore that I do expecially the outstanding PCP I have.

Jump to this post

@jc76 -- I go to Mayo Phoenix. I'm a remote patient as I live out of state and only went to Mayo for my post mri consult, fusion biopsy, surgery, and now follow up care. Because of that I don't have a PCP at Mayo, but simply work with the urology dept staff. Nevertheless I've felt I've received excellent care and am very happy with them.

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