12 year old son & meningioma

I’m sorry to hear this. I’ve thought the only thing worse than hearing I have a brain tumor would be to hear my son has one. Do you know where in the brain? It can be completely different depending on where it is. Mine was at the base of the skull, around the optic nerves and pituitary gland. Hang in there! They are almost always benign and slow growing. Most common benign brain tumor. Still scary but treatable. Stay positive!

Thank you for responding. It is at the base of his skull going into the C1-C2 vertebrae.

Did you have surgery? If so, what kind and what was your recovery like? I’m looking at all the options.

We were just referred to a neurosurgeon and waiting for an appointment.

I did have surgery this year in August. They went through my nose and then the sinuses to get to it. It was an 8 hour surgery. Recovery was a bit slow compared to others I’ve had. I was starting to rehab, ride the bike and lift weights again at two months. I had double vision for about a month, but mine was against my optic nerve, and it seems his might be in a different position. I wish the best for you both and hope you can have a nice holiday season. Stay positive!

Sounds like your surgery was successful. Congrats. We are in the early process and just trying to figure things out. Guess they won't know exactly what kind of tumor it is until they remove and test it. Positive thoughts.
Take care and Happy Holidays to you too.

please stay positive, i know hearing the words "brain tumor" is scary especially when it comes to our kids. Most meningiomas are benign and slow growing. Wishing positive outcome for your son.

@tcernac, just checking in. How are you and your family doing? Any update about your son's diagnosis? Were they able to determine a diagnosis of meningioma or nerve sheath tumor?

Thanks for checking in. This last week has been overwhelming. He’s had a second MRI of his brain and will have another of his lumbar.

We’ve met with a neurosurgeon and discussed what they believe it is. They won’t fully know the exact type until it is removed and tested. They said it is about a 4 hour surgery where he will be hooked up with electrodes to make sure they stop if they detect any negative outcomes.
I am getting a second option next week.

Here are the findings so far…
At the C1-2 vertebral level, there is an intradural extramedullary ovoid enhancing mass measuring 1.8 cm x 1.5 cm x 2.6 cm, suspicious for a meningioma or nerve sheath tumor.
This type of tumor is located inside the thin covering of the spinal cord (dura) but outside of your actual spinal cord.