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Polycythemia and lack of iron

Blood Cancers & Disorders | Last Active: Mar 9 4:07pm | Replies (6)
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@dherrman2

What was your Iron before the infusion? Mine has been between 4 and 6. And I have been told to stay away from Iron foods. I take Hydroxiria, 1000 mg, every night for 14 years. I am usually very exhausted every afternoon. I am curious because they do not want me to have any iron. I have Polycythemia Vera.

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Replies to "What was your Iron before the infusion? Mine has been between 4 and 6. And I..."
rmegg | @rmegg | Jan 19 9:50am

I also had a low iron count but it suddenly dropped over a few months and I had dry eyes, hair loss and dry ears as well as extreme fatigue. My doctor also didn't want me to have iron
because it raises the haemoglobin. Unfortunately he said that I had no iron left. My last phylobotmy was very difficult. He didn't measure the iron as my veins have also become difficult to draw blood. It was a difficult decision.

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