hello Colleen,
thank you for reaching out to me.this is how i got tested adn then the dignosis:
i have had an autoimmune retinopathy for some years nor.it is sometimes related to reumatoid arthritis.a year ago i was tested for that.no arthritis,but pre-myeloma.in september another blood test,then urine test,then one marrow,pet scan.that is how it was discoveredthe retinopathy causes loss of vision.i am legally blind.i am thinking that these teo conditions might be related.perhaps if i got treated for the MM,my retinopathy might slow down.no,the doctor did not mention that name of the disease.