Welcome @annehouseofdreams, @mhr31 posted earlier in this discussion that they were born with CMT and may be able to share their experience and suggestions with you. There is also an older discussion on CMT that may be helpful to read what others have shared.
— CMT=Charcot Marie Tooth Disease Type 2 Neurological Disorder form of MD:
https://connect.mayoclinic.org/discussion/cmtcharcot-marie-tooth-disease-type-2-neurological-disorder-form-of-md/.
Thought I would share these references with you in case you haven't seen them:
--- CMT Research Foundation videos: https://cmtrf.org/video-series-with-research-experts/.
--- (2015) A brief review of recent Charcot-Marie-Tooth research and priorities:
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4392824/
Do you know when you will have the genetic test results?