I was diagnosed w/ PN in 1999 when I was 23. No one has been able to figure out what the cause is. Last January I started having horrible burning pain in my calves and quads along with weakness in my legs that is causing me to fall a lot more and is making walking even harder (I have spasticity from mild Cerebral Palsy). Thankfully I don't have the severe burning pain all the time. It ranges from mild to severe and seems to come as flare ups. I can't figure out what causes the flare ups though. Resting sometimes helps, but for the most part, all I can do is wait and pray the pain goes away soon. Last September I began to have pain and weakness in my fingers, hands, and forearms. I also have Sjorgren's and Fibromylagia, along with many other chronic health problems. My neurologist wasn't helpful at all. I saw a new neurologist who thinks my neuropathy could be genetic b/c as a child I would get ingrown toenails and I never felt the pain. She ordered genetic testing for me to see if my neuropathy is genetic.

I've done some research and found out that Charcot-Marie-Tooth Neuropathy and it seems to fit all the symptoms I have. Does anyone here have Charcot-Marie-Tooth? If so can you tell me more about it, what it's like to have it and anything you do to treat it? Thank you and God Bless!