Anyone familiar with a Gastrectomy (total stomach removal)?

Go to facebook. CDH1 gene mutation group and other cdh1
Groups. Do you have a mutation or just other issues?

Welcome, @cyberkitty. You will find other members talking about their experiences with gastrectomy in this related discussion:
- Total Gastrectomy for stomach cancer: What can I expect?: https://connect.mayoclinic.org/discussion/total-gastrectomy/

Are you preparing for this operation soon? What condition led to your needing a gastrectomy?

Thank you so much. I have already had my stomach removed & I am struggling. I feel I am on too many heavy duty pain meds on top of the meds that allow me eat.
I am desperately trying to avoid a feeding tube. My previous experience was horrible. I am up to 85lbs before my surgical team wants me at 120 lbs.
I am so grateful for your link! It is a pretty rare surgery & I’ve never met anyone who has had one! What a wealth on information.
Of, about 5 yrs ago I stated to develop ulcers in my stomach. The Dr.s decided it was due to my high stress job. Then the ulcers began to bleed. They were cauterised and I received dozens of blood transfusions.
On one such occasion, an ER doc stated I was in organ failure. Second Dr agreed & in 15 mins I was getting prepped for surgery.
I wish I had more time to research the procedure. I didn’t know one could live without a stomach.
Most people have this procedure due to cancer.
Thank-you so much,
Cyberkitty

Best of luck. I just want to die!!

Were you ever checked for H Pylori? Were you put on a PPI?
Sorry to hear about your condition.

My friends brother had that surgery where his stomach was removed .
First he had a gastric sleeve for years than he got worse and they removed his stomach . I think 💭 like you he went through a lot afterwards. He’s 59 now and doing better.
I have a whole lot of chronic gastrointestinal issues myself . 10 years and counting . Hope things ease up soon .

Would appreciate any articles or persons with any post gastrectomy tips.
Desperately seeking nutritional meals/meal plans. Tips for gastrectomy eating by patients like me would be more than welcome.
I’m desperately trying to outrun a feeling tube in Feb.
Apologies for the typos - wrote this at the dr’s office without my glasses.

Negative for H Pylori, but am on a PPI. I believe they said I will be on that medication for life.
Thank-you for replying.

So do I on bad days. Power through and you will amaze yourself what you can live through. Message me anytime. I would like to chat with you. I have some really bad days too.
Current weight 81 lbs. Pre surgery 140 lbs. Funny thing is that I tried every fad diet for years. They say ‘Be careful what you wish for”.

I honestly don’t know if I have been tested for that. I don’t have stomach cancer and they sent my DNA to be analysed. I will definitely ask at my next doctor’s appointment.
Thank you!