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Husband with POEMS Syndrome

Caregivers | Last Active: Jan 17 9:06pm | Replies (24)
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@consol

Hi Lori. My husband had a Auto trasplant and He donated for another. The transplant was part of the treatment for his Poems, but the Specialist said the remaining of the disease is causing his neuropathy getting worse. He is in very good condition comparing with another patient with the same disease..Doctors said. He is going to start with the radiation, I believe and we'll see what happens next.

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Replies to "Hi Lori. My husband had a Auto trasplant and He donated for another. The transplant was..."
Lori, Volunteer Mentor | @loribmt | Jan 17 9:06pm

I’m sure this is all so frustrating for your husband…and for you, knowing he’s so uncomfortable. I hope this next treatment helps him get back to some normalcy. I had some issues that had me bedridden for some time. I also had lost the feeling in both legs so it took time to get back to walking without support. One thing that helped me significantly to get my balance back when walking was working with a physical therapist to strengthen my core muscles! I wonder if that might help your husband.
Wishing him all the best with his upcoming change in treatment. Will you let me how now he does please?

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