← Return to Others out there with CEL (Chronic Eosinophilic Leukemia)?

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@loribmt

Thank you for responding, John! I just want to make sure @deb913 sees this reply so that both of you can Connect. It appears that there aren’t a lot of CEL cases so it’s really nice to have someone you can talk to about your journeys with this chronic eosinophil condition.

Just for informational purposes, Jakafi is another medication that can sometimes be used with different blood conditions. HU is the frontline treatment for most but Jakafi can be a backup drug. So if HU is working for you there may be no need to ‘change horses in the middle of the stream’. ☺️

You had an astute pcp to send you for further testing with a bone marrow biopsy/analysis. Do you see a hematologist or is your pcp directing treatment?

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Replies to "Thank you for responding, John! I just want to make sure @deb913 sees this reply so..."

Lori, I am seeing a hematologist at Mayo Jacksonville.

Hi Lori,
Thank you so much for writing your own note because I did not see John's response until you pointed it out.

Best regards,
Debbie