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Anyone tried Taurine supplements?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Jan 17 5:55pm | Replies (4)
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@karukgirl

Hi @avcowie, you ask an interesting question! I found this on the internet from the Cleveland Clinic you may find interesting...
https://health.clevelandclinic.org/taurine
In the meantime, I am sorry to hear you had a negative experience with Camzyos. From what I read, taurine may have some benefits, some unknown side effects, but I would not expect it to help HCM. What does your cardiologist say? Is surgery your next step?

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Replies to "Hi @avcowie, you ask an interesting question! I found this on the internet from the Cleveland..."
avcowie | @avcowie | Jan 17 5:55pm

I will be talking with him soon and will ask. I had a holter monitor for a day last week and he wanted to look at options to help me while I wait for surgery. I was scheduled for OHS in May but had an echocardiogram stress the day before and they found mitral valve involvement- which likely brought on the HCM directly adjacent. With no mitral valve surgeon available they cancelled my surgery. Tried Camzyos for the summer and now on the surgery route again. I had intake meetings with nursing and anaesthesia in early December, but still no date. I’m guessing it’s the co-ordination of the OHCM surgeon and Mitral valve surgeon that’s causing delay. But my condition is worsening, moving to stage 4.
Looking forward to feeling better for sure. I’ll write again when I have news about taurine.
Take care,
Angela

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