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Husband with POEMS Syndrome

Caregivers | Last Active: Jan 17 9:06pm | Replies (24)

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@consol

My husband was diagnosed with Casttleman on 2018 and 2019 with POEMS, He had a Stem cells trasplant. He was fine but on April of 2022 He start gwtting the Kappa Chain high, His oncologist SAYS " your tests results are NORMAL" but I don't stop insisting for more studies and tests. Finally He got an appointment again with the Stonford Specialist and she is going to start treatment again. His neuropathy is getting worse, he has to walk with a walker. The POEMS not have a cure but the stem cells trasplant make slow down the desease. I'm his caregiver and is hard to see him getting worse in his walk and managing his balance. It is very hard for the hall family. Casseth02 God bless you and give you the strength to keep going. 🙏

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Replies to "My husband was diagnosed with Casttleman on 2018 and 2019 with POEMS, He had a Stem..."

Welcome to Connect, @consol. I’m so sorry to hear that your husband’s neuropathy is getting worse even after the stem cell transplant. That’s a lot to go through… Did your husband have a transplant using his own cells or was this with a donor? What type of treatment will he be starting for his POEMS?