Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Profile picture for bustrbrwn22 @bustrbrwn22

@jesfactsmon thanks for asking. Pain getting worse. Nurse practitioner won’t increase hydrocodone so in am basically a lump in bed. She is referring me to a neurologist for surgery but from the stories I’ve heard here on this site I am scared the pain will be worse. I am going to make a special appointment with my nurse with the AMA letter faithwalker provided us and ask her to increase until at least surgery. Does that seem reasonable? Standing is unbearable but so is sitting and lying down. Go figure. I can’t thank you enough for reaching out.

Jump to this post

@bustrbrwn22
Does that seem reasonable? Yes!

It is totally reasonable to get whatever you need to control pain. The only thing unreasonable is the war being waged against pain victims, uh, I mean drugs.

REPLY
Profile picture for bustrbrwn22 @bustrbrwn22

@jesfactsmon thanks for asking. Pain getting worse. Nurse practitioner won’t increase hydrocodone so in am basically a lump in bed. She is referring me to a neurologist for surgery but from the stories I’ve heard here on this site I am scared the pain will be worse. I am going to make a special appointment with my nurse with the AMA letter faithwalker provided us and ask her to increase until at least surgery. Does that seem reasonable? Standing is unbearable but so is sitting and lying down. Go figure. I can’t thank you enough for reaching out.

Jump to this post

Have you called your local State Boards? Your congressmen and/or women? If not m, chop chop! 😉

REPLY
Profile picture for Faithwalker007 (Renee) @faithwalker007

Have you called your local State Boards? Your congressmen and/or women? If not m, chop chop! 😉

Jump to this post

The first place I’d start would be the State Nursing Board.

REPLY

Start screeching, woman. Now.

REPLY

I would still talk to Chronic Pain Clinic no matter what your nurse practitioner says. My doctor, who is a good doctor never once said anything to me about it. We researched it on our own. As a rule these pain clinic physicians are very sensitive and understanding to your pain and will do what they can to help.

REPLY

Hi. My name is Julie and I had encephalitis and meningitis of unknown origin which lasted 6 months and that cleared up about a year ago. During these last 12 months the headaches continue daily and are very incapacitating and brain recovery is difficult and slow due to the ongoing headaches. I’ve had/ have numerous oral medications and the Cephaly device, as well as had 3 Occipital injections, 2 trials of Botox injections with no response, and now am on month 2 of Emgality. My neurologist is working his way through the options and I do appreciate that but love that I found this group and maybe will get some good support and advice. Is anyone else on Emgality? If so, how long was it before you saw results?

REPLY
Profile picture for jerid @jerid

I would still talk to Chronic Pain Clinic no matter what your nurse practitioner says. My doctor, who is a good doctor never once said anything to me about it. We researched it on our own. As a rule these pain clinic physicians are very sensitive and understanding to your pain and will do what they can to help.

Jump to this post

Yes! Absolutely!

REPLY

Hi everyone. Nice to join this group. My name is Suzanne Taylor.
Have been suffering horrible pain for many years. Since 1999

REPLY

@2muchpain hi Suzanne. If you are ok with it could you share your conditions?

REPLY
Profile picture for Faithwalker007 (Renee) @faithwalker007

Start screeching, woman. Now.

Jump to this post

@faithwalker007 and all. The NP’s at the pain clinic do all the prescribing and the doctor they report to performs all of the procedures. Would this be going above my NP’s head to her boss? Would that damage our relationship permanently and potentially cause her to retaliate in some way? She’s a great NP but I think the DEA stuff intimidates her. Please everyone please share your thoughts and thanks so much for listening!

REPLY
Please sign in or register to post a reply.