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Chronic Pain members - Welcome, please introduce yourself
Chronic Pain | Last Active: 12 hours ago | Replies (7067)Comment receiving replies
Hi. My name is Julie and I had encephalitis and meningitis of unknown origin which lasted 6 months and that cleared up about a year ago. During these last 12 months the headaches continue daily and are very incapacitating and brain recovery is difficult and slow due to the ongoing headaches. I’ve had/ have numerous oral medications and the Cephaly device, as well as had 3 Occipital injections, 2 trials of Botox injections with no response, and now am on month 2 of Emgality. My neurologist is working his way through the options and I do appreciate that but love that I found this group and maybe will get some good support and advice. Is anyone else on Emgality? If so, how long was it before you saw results?
Replies to "Hi. My name is Julie and I had encephalitis and meningitis of unknown origin which lasted..."
@julie64 & @2muchpain Welcome to Mayo Clinic Connect, a place to give and get support.
@julie64 It sounds like recovery is difficult and you have residual headaches that are being treated with Emgality.
Below I have linked two previous discussions related to your topic. You may wish to scroll through the posts and look for information and connections.
- Emgality for Migraines https://connect.mayoclinic.org/discussion/migraines-1/
- Chronic migraine relief suggestions https://connect.mayoclinic.org/discussion/chronic-migraine-relief-suggestions/
@2muchpain I too am curious what the source of your pain is? Also, what kind of shop is that? Is it your shop?
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@julie64
Hi Julie, welcome to Connect.
One way to find a specific topic here is to use the search window at the top. Using that I found a discussion that mentions Emgality several times. Here is the link to it: https://connect.mayoclinic.org/discussion/migraine-headache/?pg=1#comment-380952
I am mostly here to follow the Neuropathy Group and a couple others as well on Connect. It's good to find the place where people you have more in common with are interacting. I'm thinking you may be interested in following the Mayo Group called Brain and Nervous System, linked here: https://connect.mayoclinic.org/group/brain-and-nerve-diseases/?utm_campaign=search where you may find others who have had more involvement with encephalitis and meningitis.
I hope you are able to connect with others that also have experience with your conditions. Most folks here are warm and caring and very eager to help whenever possible. Your post here might have been missed by people because it happened to get placed into the middle of another ongoing conversation between a couple of members. One thing you may find useful is to scroll through the discussion titles in a group (like the Brain and Nervous System Group) and explore any that sound like they relate to topics you are interested in. Then read and/or post something there.
My best to you, Hank