Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

@jerid

On me, they did the main nerve just above my left eyebrow that fed the left side of my head, forehead and some of the eye. I have a feeling on you they would target the exact sciatica nerve through the spinal nerves that feed to your particular nerve. Just before I went in , for my treatment, the lady before me that had come out had an ablation to her spine for her arthritis. He told me because the arthritis never goes away and the nerve grows back this particular lady has it done every 6 months to help with her arthritis, where ever it was they were targeting. I am no physician, but if yours is in your feet maybe they could target one specific nerve in that foot or your sciatic nerve leading to that foot. I am presuming it is a foot and not both feet. It is worth a consultation with a Chronic Pain Specialist in your area with a good reputation. I had no choice, but one 60 miles from our home town. After meeting with him and reading his info on the internet I felt comfortable. The first treatment they tested a numbing medication and the ablation medication into the nerve. I had to wait 1 month for a revisit to give the medication time to do its job. It lasted 3 days and then it was over. The second treatment they used the numbing medication only and it did nothing. A month later they did a much stronger ablation procedure and it lasted 2 weeks. The procedure is relatively easy and mine didn't take very long. 30 minutes at the most. These are the procedures that my insurance regulated. It is painful, but nothing compared to the daily pain I was living with. I presume it would be the same for you as far as the pain goes. We were both disappointed it only lasted 2 weeks. I have be known to be sort of a stubborn person though. Ha Ha! Believe me I was not trying to be stubborn towards this treatment. I so wanted it to work for the rest of my life. If you can get this done and it gives you 6 months or more relief it will be worth the small pain of the moment. I just didn't go back after the 6 months since my results were only 2 weeks long. The red light laser has been my blessing. Like I said it could be yours as well, maybe. Check out a Chronic Pain Specialist. Mayo clinic might be a good place to go for this treatment as well. We just didn't have one close to us. I guess I am trying to say you will never know until you search for the answer. Keep an open positive mind. God will lead you to the right answer. I don't believe it is drugs. To me they only mess you up otherwise with other side effects. Jeri

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@jerid. Thanks so much. The sciatica goes through both shins and the bottoms of both feet. It is agony to stand up, sit down, or lie down. I will call my nurse pain practitioner about ablation today!!

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@faithwalker007

Please be careful with any treatment regarding CRPS. Much of it is outdated. The most up to date therapies and treatments regarding both types of CRPS and all presenting forms, progressive, regressing, peripheral presentation in hand or foot, neck, shoulder, back, or origination of injury is not found within the United States but Europe.
The only tap to that source I have found is The Reflex Sympathetic Dystrophy Syndrome Association’s Website http://www.rsds.org. Others attempt to stay up to date with Europe’s strides with CRPS and RSD but they are woefully behind the eight ball INCLUDING our CDC, FDA, DEA, NIH, and the WHO.

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Mirror therapy is effective IF pain is limited to one side only and peripheral. Use it!!!
Get a therapist TRAINED AND KNOWLEDGEABLE in up to date CRPS therapy not just PN. There is a pronounced difference.
CRPS is caused by WINDUP. If you don’t know what that means or THEY OR YOUR PROVIDERS DON’T, find out and teach them.

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@bustrbrwn22

@jesfactsmon thanks for asking. Pain getting worse. Nurse practitioner won’t increase hydrocodone so in am basically a lump in bed. She is referring me to a neurologist for surgery but from the stories I’ve heard here on this site I am scared the pain will be worse. I am going to make a special appointment with my nurse with the AMA letter faithwalker provided us and ask her to increase until at least surgery. Does that seem reasonable? Standing is unbearable but so is sitting and lying down. Go figure. I can’t thank you enough for reaching out.

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@bustrbrwn22
Does that seem reasonable? Yes!

It is totally reasonable to get whatever you need to control pain. The only thing unreasonable is the war being waged against pain victims, uh, I mean drugs.

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@bustrbrwn22

@jesfactsmon thanks for asking. Pain getting worse. Nurse practitioner won’t increase hydrocodone so in am basically a lump in bed. She is referring me to a neurologist for surgery but from the stories I’ve heard here on this site I am scared the pain will be worse. I am going to make a special appointment with my nurse with the AMA letter faithwalker provided us and ask her to increase until at least surgery. Does that seem reasonable? Standing is unbearable but so is sitting and lying down. Go figure. I can’t thank you enough for reaching out.

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Have you called your local State Boards? Your congressmen and/or women? If not m, chop chop! 😉

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@faithwalker007

Have you called your local State Boards? Your congressmen and/or women? If not m, chop chop! 😉

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The first place I’d start would be the State Nursing Board.

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Start screeching, woman. Now.

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I would still talk to Chronic Pain Clinic no matter what your nurse practitioner says. My doctor, who is a good doctor never once said anything to me about it. We researched it on our own. As a rule these pain clinic physicians are very sensitive and understanding to your pain and will do what they can to help.

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Hi. My name is Julie and I had encephalitis and meningitis of unknown origin which lasted 6 months and that cleared up about a year ago. During these last 12 months the headaches continue daily and are very incapacitating and brain recovery is difficult and slow due to the ongoing headaches. I’ve had/ have numerous oral medications and the Cephaly device, as well as had 3 Occipital injections, 2 trials of Botox injections with no response, and now am on month 2 of Emgality. My neurologist is working his way through the options and I do appreciate that but love that I found this group and maybe will get some good support and advice. Is anyone else on Emgality? If so, how long was it before you saw results?

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@jerid

I would still talk to Chronic Pain Clinic no matter what your nurse practitioner says. My doctor, who is a good doctor never once said anything to me about it. We researched it on our own. As a rule these pain clinic physicians are very sensitive and understanding to your pain and will do what they can to help.

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Yes! Absolutely!

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Hi everyone. Nice to join this group. My name is Suzanne Taylor.
Have been suffering horrible pain for many years. Since 1999

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