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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 6 days ago | Replies (736)
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@whidbey

I am not sure why they would increase your dose if you are doing so well on just 5 mg of Camzyos. I responded very little to 5 mg, but when they bumped me up to 10 mg., I had an amazing response to the increase and feel better than I have in years! I hope you have great results as well! joy!

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Replies to "I am not sure why they would increase your dose if you are doing so well..."
boatsforlife | @boatsforlife | Jan 16 1:34pm

I should clarify - I *FEEL* fantastic - especially when I compare it to the decline over the past 17 years. So from my own point of view, 5mg seems GREAT. So why would my cardiologist increase the dose? Well, he is looking at the objective test data and measurements and sees room for even further improvement in that area. That's his area of expertise, not mine. Given the improvement so far under his care, I'm very happy to let him lead me along that path. And who knows - maybe at 10mg I will feel even better! Worst case scenario from this decision is to return to 5mg. (That said, if he wanted to pull me off Camzyos after it gave me my life back - I'm sure I would fight like he** about that!)

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