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@debhammel

I was diagnosed with ET in November and was on 500 mg HU twice a day, 7 days a week. My platelets initially were at 692 and are now at 172! My dosage has dropped to 500 mg twice a day, 4 days a week and we shall see how I'm doing at my blood draw next Tuesday. Finding the right dosage is trial and error. I have experienced no noticeable side effects. I'm 69 years old and considered high risk due to my age. I'd recommend not worrying about the side effects as, obviously from the comments, we all react differently.

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Replies to "I was diagnosed with ET in November and was on 500 mg HU twice a day,..."

Thanks for the information been taking 500mg daily platelets dropping from 1036 to 796 took another test today 20 days later and only dropped to 732 they now want me to take 1000mg and be tested in another month. I really don't want to take that high dosage. How tired will I be ? I normally wait until 8pm to take my bill to not feel tired
I work daily just frustrated I thought they would at least decrease more by now. Also frustrated working with NP as I only met Dr first and she been on leave for her baby being born
Thinking about going to another dr.