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SUSAN: I evidently messed up horribly and my replies went TO ME!!!
As much as I tried to rectify that, NOTHING worked.
THE BEST THAT CAN BE DONE AT THIS TIME:
Scroll down to where my replies to you are directed as delia74. @delia74
Please let me know if you've read my info...I include info on the FALLING BACKWARD, which you say you've experienced. I have also!
Replies to "SUSAN: I evidently messed up horribly and my replies went TO ME!!! As much as I..."
@delia74
Wow! You have been and continue to be going through so much!
Question, you have Ataxia right? I thought I read that. Why do you have it? Did they tell you that there are several causes? I have it because my cerebellum has atrophy.
How has the Ataxia been affecting your life until now? The symptoms are exactly what you have described as far as double vision, and balance issues, and bad coordination.
The falling backwards is new for me. As soon as I mentioned it to my neurologist’s NP he knew immediately that it is being caused by the atrophy in my brain. So, I must use a walker when I’m out of the house. Most importantly, I have to remember to keep my back to it if I stop and stand still.
Now another thing has popped up. My gait is horrible and now when I try to step my right leg forward, it goes forward in a semicircle before my foot goes down. It’s hard to put into words…
It’s getting late and I must go to sleep. I have a sleep disorder that keeps me tired all day. Now I take medicine in the morning so I’m awake all day. But, I go to bed at midnight!
Blessings!
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My wife (early seventies at the time) has had backward disequilibrium only since the day the ER diagnosed a golf ball size brain bleed (stroke). If I had it I would not do stairs or drive at all. She has recovered significantly; but still has serious balance issues two years later. PCP seemed to know nothing about the condition. Neurologist didn't respond to my narative about symptoms.