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DiscussionDid Decipher GRID report help guide your treatment decisions?
Prostate Cancer | Last Active: Apr 27 11:10am | Replies (39)Comment receiving replies
Replies to "I just called them at left a message on voice mail. Additionally I sent an email..."
...maybe closed for MLK holiday weekend???
Anyway, here's the contact info of the person who helped me get a copy of my GRID report: Michele Abolafia , Manager Customer Experience, michele.abolafia@veracyte.com, 858.322.6129.
You will have to call to speak to Michele (or someone), during normal business hours, since they must send a release form, to your email address, for you to return via electronic signature. In addition you will have to send a scanned copy of your driver's license.
That said, Michele told me she would be looking for my completed form while I was still speaking with her, which I was able to turn around in ~10 minutes. I sent my scanned drivers license directly to her email address, along with an email address they specified....privacy is (obviously) a key concern....
Of course (hopefully), the doc who ordered your original 3 page Decipher Report could also obtain a copy of your GRID report. However, I would be surprised if your doc is going to be willing to take the time to review the intricacies of your GRID report with you...again...it's research use only and contains a boatload of data.
The GRID report is a detailed 7 page report and every page has the heading "Research USE Only" (see below)...this is important to keep in mind. Veracyte has been collecting data since 2015 and they now have >140,000 whole transcriptome tumor profiles. Apparently this latest Decipher GRID (for Research Use Only) database uses a proprietary AI platform to compile and generate a report that is personalized and based on the genomic test results obtained from your particular cancer cells, as compared to all the others in their database.
In a 23 minute video (Dr. Ashley Ross, MD PhD) explains the info supplied in the Decipher GRID report (found here: https://www.youtube.com/watch?v=0gNzrglGlwE&t=72s)
Among the boatload of info in this report, I found some intriguing stuff regarding Gene Signatures related to "Tumor Metabolism" (i.e. scoring based on Androgen Signaling, Cholesterol Pathway, Estrogen Signaling, Fatty Acids, Glycolysis). I'm still trying to understand what exactly this may suggest...
In any case, this is undoubtably much more information than most will want to know and I'm sure most docs will roll their eyes if you ask specific questions about the intricacies of your GRID info...but for us "data nerds" its where all this is heading regarding individualized treatment plans....for better or worse.....