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Drug hyper-sensitivity?
I'm at 3 years long vivid, but improving. There is hope yet.
My symptoms are wanting but for three years never constant
Too many doctors had me swallowing too many pills to which I gradually developed a growing list of negative side effects . The primary (but only) culprit was beta blockers or was it aloha blockers or both?
For old man's benignly swollen prostate I took Tamiulosin for two years. Peeing improved but at great expense. I developed dizzy spells with face flushing insomnia and diarrhea.
U stopped taking the pills and all of that disappeared. Two months later (two days ago) as an experiment I took ONE Tamulosin. Guess what reappeared. With a vengeance.
Punchline. Perhaps I had these adverse tendencies anyway. But I have a string suspicion Long Civid made them an order if magnitude worse.
My incontrovertible evidence is my infeasible intuition. I have no real evidence I do now believe it to be .
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phones are an abomination. I wanted to proof read but could not get my phone to allow it. I hope the readers can decipher the gibberish above.
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1 ReactionI’m trying to avoid meds too, but if the doctors told me there was one for my taste disorder I’d happily take it. It’s gotten very stressful and I welcome a remedy.
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1 Reactioni’ve been post Covid since 2021 and I am the same way. I never had to take any kind of medication’s prior to long Covid but now I have to take about 10 to 12 and the problem with the medication is we have found that I am sensitive to medication’s every single medication that is prescribed to me. I have a reaction to every single one which makes the condition worse.
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1 ReactionHello Celia16,
I am also a Long Covid Hauler and have not had any taste or smell for over a year now. I’m looking into a procedure called a Stellate Ganglion Block which is an injection given on either side of your neck (in the ganglion nerve) to help with getting taste and smell back. It has worked. I am having acupuncture now, but to no avail. Look into this shot as I’m like you, would take a pill to get it back. It’s pretty awful!
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2 ReactionsIkirnbauer, thanks for reminding me of that. I did read something about it a while ago. Where would you have it done? I’m going to ask my ENT about it. At least see if I am a good candidate. Duke should have somebody who could do it. My issue is that I do have some smell and taste, but they are damaged. Neither work well, but the huge issue is the constant bitter taste. I wonder if that procedure works for that. It’s damage to the olfactory nerve….at least that’s my understanding of it.
Please post what you find out. And, your progress. I really hope you get relief! Smell/taste is a huge issue when it’s damaged. People just don’t understand.
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2 ReactionsI'm the thread author. 75;year old founder of Geezers Gone Wild?
it is distressing to hear about folks who still cannot taste or smell.
Mine came back. The primary main deal for me has been a merry go round My symptoms keep changing. The only constant, aside from diminished energy, is Tinnitus, which I attribute to a mild Menieres like inner ear inflammation...is change.
Fatigue and brain fog gave way to indigestion and diarrhea, then to insomnia and "emotional volatility." And then to almost but not quite feinting, face-flushing dizzy spells. PVC heart palpitations became Atrial Fibs.
What's next?
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2 ReactionsThat’s so incredible. You have really had a full attack. I hope you can find some relief.
Hi @spittendrigh. I'm a long-time longhauler like you. In March, I will hit 4 years.
Also like you, I have had the merry-go-round of symptoms over this time, including losing my autonomic functions (eating, sleeping, breathing). It took me until the 3 year mark to be able to begin taking even the mildest of medications again. (One dr. said, "this is a medication we give to ICU neonates it's so mild, and we'll start you on the lowest of doses". Nope. Had to stop after 2 days.) This change seemed to correlate with inflammatory blood markers returning to normal range (several of mine were really high). So I think it may be a systemic inflammation thing. I can take just about anything again now.
One thing about me I want you to know... I have improved over time, excruciatingly slowly it seemed, with even the worst of symptoms eventually relenting. It was very recently, at the 3 3/4 yr mark, that I seemed to almost miraculously return to quasi normalcy wrt most symptoms, except for my GI symptoms which are still out of control. I'm hoping this is a sign that Long Covid will improve with time. Whether that's time alone, or in combination with the myriad of things I have done/tried, we may never know. Just beyond happy to be here now!! I wish the same for you and everyone on this site.
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6 ReactionsI’m glad you have seen improvement! That’s quite inspiring. Is there anything you can attribute it to….other than time?
cold turkey in all pills except Liquis. ( blood thinner to prevent stroke,). Alpha and Beta blockers made everything worse
prostate meds sleeping meds anxiety.mrds all out the door. Walk one hour every day no matter what.
Feugn optimism long enough it finally happens.