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@janetbender

Your doctor will decide your HU dosage.
Four mo ago my platelet count was 1.1 million.
I take 500 mg daily HU and my platelet count is 600k.
It’s still going down and I feel better than 4 mo ago.
The worst of the side effects - because we read everything before seeing the doc - was later explained is for other diseases with 8,500mg daily!
Everyone reacts differently but my side effects lasted a few weeks.
I have slight hair loss, stomach ok, just fatigue. I’ve had long Covid so I can’t always attribute symptoms….
Make a list of questions to discuss with your doc. My list gets shorter with each visit!

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Replies to "Your doctor will decide your HU dosage. Four mo ago my platelet count was 1.1 million...."

I also keep a running list of questions. I use wegovy for weight loss & already deal with nausea on the first couple days of each week. I also already deal with fatigue as one of my ET symptoms. I'd hate for it to get worse. I work from home so I sometimes have to take a nap during my lunch hour in order to make it thru the day.