Chronic Pain members - Welcome, please introduce yourself

@veda Ouch! You have had a lot to deal with. It make take a bit of time for the ointment to work. If the discomfort is more than you think you should have to deal with, contact that same dr and find out if there is something you can do for that side effect. Kinda like "bark is worse than the bite", right?
Ginger

@cocodab
I'm sorry to hear things are no better. Are you just plain alone? Do you have family members or friends to reach out to? I know with covid we have been unable to visit any family members in almost a year. My mother turns 99 on 2/16, but she seems so vital I think we will get to be with her for her 100th next year (fingers crossed). But what about you, any family at all? Hank

B12, get your blood tested, you might not need it. "I didn't" blood level went to high. just don't blindly take things , you should have your blood tested before having B12 or anything else injected.I truly hate saying this but the nerves are damaged, you cannot make them whole. After 20 yrs of if Gabapentin is the best that can be done. Be CAREFUL,take twice a day instead of three.Google Long term use off Gabapentin.It can cause Erosive Gastritis and more. Read everything you can, You must be your own health advocate.I might be old 86 but I'm smart.. MOST IMPORTANT ASK QUESTIONS>

Your right we might look wonderful but inside is a different story.I am new here. my name is Jackie, I have had neuropathy for 18yrs. and it makes our lives miserable.I am old and in so much pain I rarely leave my Condo on the beach, when I do go down the elevator and see people in the lobby they say, Hi Jack OMG you look wonderful.[on the outside] In London I was a model.I used to ballroom dance, traveled the world. Now all has changed. I miss my life, friends have passed on. and we are left with pain and alone.and to top it off this blAsted COVID Virus.This is supposed to be uplifting, but the truth is always there. Be very carful with gabapentin. Google Long Term Affects. I honestly wish you well

Hi everyone, it's been a while since I've been here and just thought I'd drop by with my 2 cents worth. Like most of you, I too have neuropathy. I am in the early stages and I noticed my feet getting a little worse lately. It feels like I always have socks on even when I don't. and if I walk bare foot they feel like I am walking on small soft pellets. I have not had the burning and swelling that I have heard a lot complain about, not yet anyway. My legs are what is painful to me. Sometimes the pain is so bad it wakes me from a sound sleep and involves my entire body, at those times , I find it hard to move, to even roll over to get something to take out of my bed side stand. Dr. has me on gabapentin 300 mgs, 4 at night and 2 in the am. Also is trying me on Diclofenac cream but hasn't done much good that I can notice. I have Tramadol tabs but there again doesn't help a whole lot. I am having 3 different types of pain and I think that is adding to the difficulty in treating me. I have back surgery in 2017 and didn't help, it didn't make it any worse just didn't help. I have severe spasms in my lower back that stop me in my tracks. I take muscle relaxants and I do have some relief with them. I also have pain from arthritis, I have it is my back, both hips, both shoulders, neck and right knee, then there is the neuropathy pain. There are days I can barely make it to the bathroom and at the time of this writing they haven't found much that helps any of it. My daughter also has neuropathy and complains of pain far more than I do, I have no doubt that hers is much worse than mine is. I was searching the web for ideas on natural pain meds, I came across one called Kratom, has anyone ever tried it? I want to try it but with so many medication being discouraged in older adults, have decided to wait and see if anyone else has tried it first. I sent for it and it is sitting in my drawer un opened. From what I am understanding, it's very effective, all natural and works like an opioid. I hope everyone finds something that works for them and I hope when they do, they will share it with this group. In the mean time I wish everyone to be safe and as happy as possible.. thanks for letting me share my 2 cents worth... Jeanie

I am Nancy from Chattanooga Tennessee suffering with chronic foot pain. I have had different opinions on what is going on and do not know where to turn next for answers. I live in chronic pain with burning, tingly and numb right foot. If anyone has any suggestions please let me know. Ty in advance! Nancy

Hello, Nancy, my name is Renee. If you don’t mind me asking, when did all this start?

@nlong53 Welcome to this group we are a caring group. May I ask if you had an injury to your foot or back ? This sounds like neuropathy but you should have it comfirmed by a neurologist .

@jeanie26
Hi Jeanie, I am sorry to hear that you and your daughter both suffer this awful pain from neuropathy. Linda, my wife, does as well. To get to the point of your post, yes, Linda has used kratom. We found out about it from Lori, another member, @lorirenee1 , who uses it extensively, probably at least 3-4 times per week I believe and she swears by it. Lori recommended a company named Etha that sells very pure kratom, so I bought a few sample bags of the pills ( which are pure kratom -no additives) for starters and it did help the pain. Linda's problem with it is that it seems to make her kind of out of it, and this effect lasts for many hours. If she takes it in the evening, it cuts the pain way down, then she goes to bed, and in the morning the "out of it" feeling persists on into the next day. So for this reason she is reticent to use it unless she is desperate. Linda's go-to is marijuana. She uses that more than anything else (about 3-4 days per week I would estimate) to get pain relief. But you can find more info about kratom on Connect by using the search window at the top of the page you are reading and enter the word kratom and you should find lots of references. There is also a lot of info online. The Etha company has some, and it's website is ethanaturals.com.

I hope your leg pain does not progress further. Linda's PN pain is in her feet, and they BURN like crazy, all day most days. This is no fun for her, or for me for that matter. Good luck Jeanie, my best to you. Hank

@nlong53
Hi Nancy, we live just up I-24 from you in Franklin, TN. Welcome to Connect! Do you suspect that the source of your pain from neuropathy, because it sure sounds like it. Although usually it appears bilaterally in both limbs. So it would be good to confirm one way or the other Have you been seen by a doctor about it? There are different tests they can do to diagnose neuropathy. If interested, here is a good Mayo page that lists all or most of them: https://www.mayoclinic.org/diseases-conditions/peripheral-neuropathy/diagnosis-treatment/drc-20352067

My wife has neuropathy in both feet and ankles. They burn all the time. She has avoided pain meds as she is very sensitive to taking them. She tried gabapentin once and got no pain relief but several unpleasant side effects. So now she mostly uses marijuana for relief. Can I ask, how long has your foot been bothering you and did it start gradually or suddenly, for no apparent reason? Just curious. I do know that if it's PN, there are a lot of things that can cause it, some not obvious at all.

I hope you can find answers as well as solutions. Best, Hank