I have am 69 yo and been living with ET for 21 years.I have been on Hydrea and aspirin for 9 years. I am doing well. My platelets range around 600,000- 800,000. I cannot seem to get them below 550,000 without lowering all the other blood cells to a dangerously low level. I take hydrea 1,000 milligrams 4 days a week and 1,500 3 days a week. I do get tired but I just rest and read or watch movies and try to enjoy life. I walk and do yoga but I am thinking of adding swimming a couple of days a week. I am glad you are at the 30 year mark. I really have to follow all the best advise given in order to live well. For example, my body, mind and liver will not tolerate any alcohol, I have to drink at least 90 ounces of water per day, I need to exercise, I need to stay calm and centered and continue in therapy, I need to eat well and avoid gluten, and sugar and keep the dairy to a minimum. If I do these things I do not suffer as badly from pain, numbness, headaches and many other strange symptoms. It gives me hope that you are doing so well at 30 years. Thanks for posting. I wish you all the best.

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