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Does anyone take Tegritol for burning mouth syndrome

Chronic Pain | Last Active: Feb 23 7:31pm | Replies (5)
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@thoracic

I took Tegretol XR for 18 years, it did help me a lot. The only thing I have checked frequently was my sodium levels. My doctor told me that even with the low sodium levels if I took electrolytes, protein, and sodium chloride tablets, I could stay on it if I wanted to. You probably know it already, but there are many anti-seizure drugs, besides Tegretol that you could possibly try.

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Replies to "I took Tegretol XR for 18 years, it did help me a lot. The only thing..."
healthybon | @healthybon | Jan 15 12:40am

Thoracic, Thanks for sharing your response. I tried Tegritol and it made me sick. I am on neurontin now and in my situation the burning mouth has evolved into painful nasal passages and cheeks next to my nose ( sinuses). My pcp suspects that I have glosspharangeal neuralgia which involves a nerve thing next to the trigeminal nerves. My burning mouth has evolved into an unbearable, excruciating type of pain..it is unbearable. He has me on oxycodone temporarily until I get in to see the neurosurgeon he has referred me to in Atlanta. So I’m really hoping to get answers. It’s very scary.

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