Fibromyalgia: Functional Medicine Dr & Supplements Helped Anyone?

Posted by ripley @ripley, Jan 6 5:24pm

Has anyone worked with a Functional Medicine Dr and tried vitamins and other supplements to lessen Fibromyalgia symptoms?

A new Dr I’m seeing suggested these supplements for me: Probiotics, Collagen Powder, B Complex vitamins, Magnesium, CoQ10, Omega 3 Fish Oil, and PEA fatty acid (palmitoylethanolamide) with curcurim.

She also wants me to slowly replace my Pantoprazole with Famotidine (and eventually stop that) and also try to get off my daily Miralax. This is to help fix my “gut health” which some studies have linked to Fibro symptom severity.

I've had Fibro for two years. Every couple of months I get flares lasting two months or so. The only medication I take is the muscle relaxant Cyclobenzaprine (Flexeril), which I only take when pain is interfering with my sleep.

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

@ripley

So, are you taking any of the drugs meant for Fibro? If so, which ones and how much relief is provided? Also, what is "tapping"? Thank you.

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Yes I thought I was writing on another post where I mentioned that I take sevreal meds recommended for Fibro;
Lyrica 200ms 3x day
Cymbalta 60mg day
Morphine extended release 30mg 2 x day. This changed my life for the better
Tizanadine 4mg up to 4 at bedtime.
Nortriptyline 100 mg at bedtime
Remember I have been on various meds for Fibro since 2000, so my tolerance or need has gone up over time.
I take high quality multivitamin, magnesium powder [Calm} for Restless Leg and Triple Magnesium supplement at times for IBS, Qunol Turmeric 2000mg, Vitamin D3, Calcium for Osteopenia, Vitamin C.
Tapping for Emotional Release is an incredible, well- researched and scientifically proven , tapping of certain areas on the face and chest which stimulates the meridian points on these areas. You can find videos on Youtube. [Nick Ortner Tapping for Pain Release, or something like that]. I am a skeptical person and I do my own research on things before I believe. I am a strong believer of this. The Tapping Solution is a free [FREE!] app that breaks down the information. It is a simple technique that stimulates parts of the brain that help with pain, anxiety, sleep problems, etc. It is miraculous. It often turns my day around. I use it every night when I try to ease into sleep. And every morning to lower my pain before I get out of bed.
As far as the relief I get from the Fibro medication. I would not be still on this Earth without the help they provide. My quality of life is greatly improved with the medicine. Chronic pain for 40 years certainly has made me depressed. I have never had any bad side effects. With Lyrica, a Doctor starts a person on a much lower dose than me. I have been taking it for 16 years.

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Probiotics help my IBS problems greatly. I use different brands in order to benefit from the different ingredients.

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I just had Facet nerve blocks at C67 which reduced fibromyalgia pain significantly.
Lyrica is the only thing that helps and pain pills if really bad

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@charliegirl

Yes I thought I was writing on another post where I mentioned that I take sevreal meds recommended for Fibro;
Lyrica 200ms 3x day
Cymbalta 60mg day
Morphine extended release 30mg 2 x day. This changed my life for the better
Tizanadine 4mg up to 4 at bedtime.
Nortriptyline 100 mg at bedtime
Remember I have been on various meds for Fibro since 2000, so my tolerance or need has gone up over time.
I take high quality multivitamin, magnesium powder [Calm} for Restless Leg and Triple Magnesium supplement at times for IBS, Qunol Turmeric 2000mg, Vitamin D3, Calcium for Osteopenia, Vitamin C.
Tapping for Emotional Release is an incredible, well- researched and scientifically proven , tapping of certain areas on the face and chest which stimulates the meridian points on these areas. You can find videos on Youtube. [Nick Ortner Tapping for Pain Release, or something like that]. I am a skeptical person and I do my own research on things before I believe. I am a strong believer of this. The Tapping Solution is a free [FREE!] app that breaks down the information. It is a simple technique that stimulates parts of the brain that help with pain, anxiety, sleep problems, etc. It is miraculous. It often turns my day around. I use it every night when I try to ease into sleep. And every morning to lower my pain before I get out of bed.
As far as the relief I get from the Fibro medication. I would not be still on this Earth without the help they provide. My quality of life is greatly improved with the medicine. Chronic pain for 40 years certainly has made me depressed. I have never had any bad side effects. With Lyrica, a Doctor starts a person on a much lower dose than me. I have been taking it for 16 years.

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I'm happy for you for finding relief with those drugs. I have had fibro for 40 years and cannot take any of them. I will looking into this tapping thing.

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@charliegirl

I am so happy you are finding your way versus taking a lot of medicine. I resisted all the medicine offered to me for Fibro, until I was desperate and could no longer work a regular job or keep a schedule. But I have have had recurring and then chronic back pain for 25 years before my Fibro diagnosis in 2000. So I am grateful for the easing of the symptoms on "some" days. But I also found that having a nasty disposition due to pain, makes you lose people in your life! I found hope with Progressive Muscle relaxation and guided meditation. I also added tapping for emotion release. These things, done daily, absolutely changes my very high pain levels, to tolerable pain. Take care of yourselves!!

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Thank you. It’s not easy and some days I get quite depressed as I’m no longer able to be active like I once was (I used to be very outdoorsy), nor can I work or function as I’d like. Family and what friends stuck around don’t understand Fibro, most think it’s psychological. My own spouse knows what I suffer but “forgets” and has unrealistic expectations. And like so many others, I have other complications and health issues that started first, and now have worsened. There are days I consider changing my stance on drugs for pain, but having once worked in ER, I know all too well how those can lead to other problems.
Like so many, I am exhausted. Chronic pain has taken over my life, has cost us loads of money on supplements etc. that MD’s, NP’s, recommend but insurance won’t cover, as well as common prescription meds and tests, and visits our insurance also won’t.
I, too, have been dismissed or offered antidepressants countless times, which I rejected because they all cause weight gain which, being unable to exercise, I cannot afford. I completely understand those who likewise, cannot afford to NOT use pain medication because they must work, or have children of other family to care for and don’t have the luxury of taking breaks when needed.
I’ve just heard that they have confirmed that Long Covid, and perhaps other viruses hide in muscle and other tissues to escape our body’s immune system from attacking them. It is now thought that Fibro and Chronic Fatigue with its brain fog, similar to Long Covid, may be the result of viral infection that was cleared from the bloodstream (giving false negative of from blood tests) but has hidden in tissues and eventually builds up within them to cause pain and fatigue by hijacking the energy producing/utilizing systems within (mitochondria), which in turn cause a host of other health and metabolism problems. This means that while a fix for me may be unavailable, at least future generations may not have to suffer as patients now are.
It does make one wonder, if anyone had simply prescribed anti-viral medication at early stages, if all of this suffering could have been prevented.

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@inminn

Thank you. It’s not easy and some days I get quite depressed as I’m no longer able to be active like I once was (I used to be very outdoorsy), nor can I work or function as I’d like. Family and what friends stuck around don’t understand Fibro, most think it’s psychological. My own spouse knows what I suffer but “forgets” and has unrealistic expectations. And like so many others, I have other complications and health issues that started first, and now have worsened. There are days I consider changing my stance on drugs for pain, but having once worked in ER, I know all too well how those can lead to other problems.
Like so many, I am exhausted. Chronic pain has taken over my life, has cost us loads of money on supplements etc. that MD’s, NP’s, recommend but insurance won’t cover, as well as common prescription meds and tests, and visits our insurance also won’t.
I, too, have been dismissed or offered antidepressants countless times, which I rejected because they all cause weight gain which, being unable to exercise, I cannot afford. I completely understand those who likewise, cannot afford to NOT use pain medication because they must work, or have children of other family to care for and don’t have the luxury of taking breaks when needed.
I’ve just heard that they have confirmed that Long Covid, and perhaps other viruses hide in muscle and other tissues to escape our body’s immune system from attacking them. It is now thought that Fibro and Chronic Fatigue with its brain fog, similar to Long Covid, may be the result of viral infection that was cleared from the bloodstream (giving false negative of from blood tests) but has hidden in tissues and eventually builds up within them to cause pain and fatigue by hijacking the energy producing/utilizing systems within (mitochondria), which in turn cause a host of other health and metabolism problems. This means that while a fix for me may be unavailable, at least future generations may not have to suffer as patients now are.
It does make one wonder, if anyone had simply prescribed anti-viral medication at early stages, if all of this suffering could have been prevented.

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Are you on, or have you taken, any meds to help with fibro pain? If so, what was your experience? The only drug I'm using now is Cyclobenzaprine 5mg at night when I'm having a flare. I'm working with a functional medicine DNP and trying supplements which she said will eventually help.
I totally agree with you about the effect the chronic pain has taken on my life. I also was very active outdoors, and suffer from depression with the loss of my former self. It's also hard because no one (except those with fibro) can understand the pain and fatigue we experience. Most of my friends think it's all in my head, or my pain is just a few aches that can't possibly limit my activities much. When I try to explain, I feel as though they see me as a whiner and complainer.
My symptoms started full force a few days after my first bout with Covid two years ago. My flares last 6-10 weeks when the pain is extreme. Between flares my pain is manageable but the fatigue is overwhelming. My husband is a big help but I don't think he comprehends what I'm feeling.

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My goodness, I understand and have experienced that all as well. Honestly, I get so offended when people “joke” that I’m a mooch off off my husband for not working or say things like “ Oh, yeah I have aches sometimes in the morning too”. The public really needs to understand Fibromyalgia more, and general practitioner doctors and NP’s should HAVE to learn about it to practice. We are not all drug seekers, nor is it in our heads. Mine struck me suddenly when I was training for a triathlon! I began waking up feeling like I had been run over by a truck and scraped off the highway and became worse from there. The fatigue alone would be debilitating enough, but the pain…everywhere, everyday plus never feeling as if you’ve slept at all, even with the help of magnesium and melatonin…my goodness how do you describe it so as to make anyone understand when there is nothing to compare it to?

As far as what I do take, it is this: Methylated multivitamins (esp. B complex), zinc and chromium because I am now pre-diabetic, digestive enzymes and probiotics because I no longer digest or process food properly, calcium citrate because I can no longer tolerate dairy and have lost bone mass, high potency vitamin D because I am deficient, *low dose* Naltrexone which has been shown to reduce pain and inflammation, and the melatonin and magnesium before bed to aid sleep. If the pain is unbearable, I take Aleve, but too much ruins GI micro biome and leads to a whole host of problems in turn.
Most days I “power through”, but I won’t pretend it isn’t mentally and emotionally difficult to do so. Sometimes I break down and cry just from being tired of having pain 365 days per year for nearly 13 years now. Even getting hugs from godchildren or being jostled by our dog sends additional waves of pain throughout my body. I must take several breaks while doing house chores and walking up and down stairs has become very painful as well, and that is pain on top of the generalized joint and muscle pain and weakness I, and most with fibro, experience every day. And I am considered to have only moderate symptoms. I’ve known some that are bedridden almost every day.
Health care workers need to understand the frustration, financial stress, emotional toll, marriage strain and self esteem loss that comes with having such a hopeless condition.

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@inminn

My goodness, I understand and have experienced that all as well. Honestly, I get so offended when people “joke” that I’m a mooch off off my husband for not working or say things like “ Oh, yeah I have aches sometimes in the morning too”. The public really needs to understand Fibromyalgia more, and general practitioner doctors and NP’s should HAVE to learn about it to practice. We are not all drug seekers, nor is it in our heads. Mine struck me suddenly when I was training for a triathlon! I began waking up feeling like I had been run over by a truck and scraped off the highway and became worse from there. The fatigue alone would be debilitating enough, but the pain…everywhere, everyday plus never feeling as if you’ve slept at all, even with the help of magnesium and melatonin…my goodness how do you describe it so as to make anyone understand when there is nothing to compare it to?

As far as what I do take, it is this: Methylated multivitamins (esp. B complex), zinc and chromium because I am now pre-diabetic, digestive enzymes and probiotics because I no longer digest or process food properly, calcium citrate because I can no longer tolerate dairy and have lost bone mass, high potency vitamin D because I am deficient, *low dose* Naltrexone which has been shown to reduce pain and inflammation, and the melatonin and magnesium before bed to aid sleep. If the pain is unbearable, I take Aleve, but too much ruins GI micro biome and leads to a whole host of problems in turn.
Most days I “power through”, but I won’t pretend it isn’t mentally and emotionally difficult to do so. Sometimes I break down and cry just from being tired of having pain 365 days per year for nearly 13 years now. Even getting hugs from godchildren or being jostled by our dog sends additional waves of pain throughout my body. I must take several breaks while doing house chores and walking up and down stairs has become very painful as well, and that is pain on top of the generalized joint and muscle pain and weakness I, and most with fibro, experience every day. And I am considered to have only moderate symptoms. I’ve known some that are bedridden almost every day.
Health care workers need to understand the frustration, financial stress, emotional toll, marriage strain and self esteem loss that comes with having such a hopeless condition.

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inminn I don’t have fibromyalgia - but I do have chronic pain from osteoarthritis which from reading your text above does not seem as all encompassing as fibromyalgia pain. There are quite a few well rated books on Amazon in regards to methods of treatment for fibromyalgia. I don’t know if any of them are helpful, but I have learned a lot about my Osteoporisis and Osteoarthritis from reading many books on those diseases. Since we are all different you have to filter the books you read as they apply to your body’s reactions to proposed solutions. I wish you success in finding a solution that works for you,
Best wishes,
Lynne

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@inminn

My goodness, I understand and have experienced that all as well. Honestly, I get so offended when people “joke” that I’m a mooch off off my husband for not working or say things like “ Oh, yeah I have aches sometimes in the morning too”. The public really needs to understand Fibromyalgia more, and general practitioner doctors and NP’s should HAVE to learn about it to practice. We are not all drug seekers, nor is it in our heads. Mine struck me suddenly when I was training for a triathlon! I began waking up feeling like I had been run over by a truck and scraped off the highway and became worse from there. The fatigue alone would be debilitating enough, but the pain…everywhere, everyday plus never feeling as if you’ve slept at all, even with the help of magnesium and melatonin…my goodness how do you describe it so as to make anyone understand when there is nothing to compare it to?

As far as what I do take, it is this: Methylated multivitamins (esp. B complex), zinc and chromium because I am now pre-diabetic, digestive enzymes and probiotics because I no longer digest or process food properly, calcium citrate because I can no longer tolerate dairy and have lost bone mass, high potency vitamin D because I am deficient, *low dose* Naltrexone which has been shown to reduce pain and inflammation, and the melatonin and magnesium before bed to aid sleep. If the pain is unbearable, I take Aleve, but too much ruins GI micro biome and leads to a whole host of problems in turn.
Most days I “power through”, but I won’t pretend it isn’t mentally and emotionally difficult to do so. Sometimes I break down and cry just from being tired of having pain 365 days per year for nearly 13 years now. Even getting hugs from godchildren or being jostled by our dog sends additional waves of pain throughout my body. I must take several breaks while doing house chores and walking up and down stairs has become very painful as well, and that is pain on top of the generalized joint and muscle pain and weakness I, and most with fibro, experience every day. And I am considered to have only moderate symptoms. I’ve known some that are bedridden almost every day.
Health care workers need to understand the frustration, financial stress, emotional toll, marriage strain and self esteem loss that comes with having such a hopeless condition.

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How much do you think the LDN helps for pain? I tried to take it twice, but each time I got up to .5mg, I got severe insomnia. I already have trouble sleeping, but the LDN made it much worse. I had high hopes that it would help, not sure if I'll try it again.

I now take 2.5mg melatonin and 75mg Trazodone for sleep. When in a flare, I take .5mg cyclobenzaprine which helps a bit. I'm working with a functional medicine DNP now and slowing trying several supplements.

What type of magnesium do you take and how much? I'm going to start taking magnesium glycinate soon.

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I've been seeing a functional medicine Dr. for 3 years after being tired of just getting more pills from regular Drs. Probiotics and B12 have been helpful to a degree. Curcumin didn't seem to help much. Magnesium help some too and collagen didn't change anything for me. I'm going yo see a new functional medicine Dr. next month since my old one moved.

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