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Others out there with CEL (Chronic Eosinophilic Leukemia)?

Blood Cancers & Disorders | Last Active: May 5 9:15am | Replies (23)
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@deb913

Hi John,
My name is Debbie. I was just diagnosed with CEL IN December 2023. I am being treated with Jakifi which has helped get my eosinophils under control . I am being seen at Emory Winship. I have a very rare Jak2 mutation. It’s very encouraging to me that you’ve been 6 years being treated. Do you happen to know if you have a Jak2 mutation or what mutation is causing your CEL? I’m curious because there is so little information on CEL and its treatment. I look forward to hearing more.

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Replies to "Hi John, My name is Debbie. I was just diagnosed with CEL IN December 2023. I..."
Lori, Volunteer Mentor | @loribmt | Jan 15 8:48am

Welcome to Connect, @deb913 It can be a little scary and lonely to have a new diagnosis so I’m happy you found our great support group. Hearing positive stories from other members who share the same condition, such as @johnra with his diagnosis and treatment of CEL, can really give us encouragement.

It’s also encouraging to hear that you’re having positive results with Jakafi to reduce your eosinophils. What symptoms where you having that led you to a diagnosis?

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