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Has anyone tried treatment for diabetic neuropathy?

Neuropathy | Last Active: Apr 23 12:48pm | Replies (55)

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@johnbishop

Hi Celia @celia16, Thank you for the private message. I hope you don't mind but I thought I would respond to your private message question in this discussion so that others with your symptoms and type 1 diabetes may also be able to share their experience with you. To answer your first question, I am doing fairly well with my neuropathy as it has not progressed and I have some feeling returned to my feet. I posted my neuropathy journey story in another discussion here - https://connect.mayoclinic.org/comment/310341/.

You mentioned you have type I diabetes and a little numbness in your feet and you have good sensation and circulation. Your neurologist says it’s not neuropathy and you were asking how my neuropathy was diagnosed. My Mayo neurologist scheduled some lab tests including an MRI, nerve conduction test and a physical exam and diagnosed me with idiopathic small fiber peripheral neuropathy which he thought was probably genetic. From what I've read the gold standard for diagnosing neuropathy is a skin punch biopsy which I didn't have for the diagnosis. This short video by Matthew B Jensen Assistant Professor of Neurology, University of Wisconsin that gives a good explanation of how the different neuropathies are diagnosed.
https://www.youtube.com/watch?v=3FrQ7Glvgok.
Another key to my puzzle could have a connection to your symptoms. Until recently I have always been labeled pre-diabetic due to not having my blood sugar under control and also being quite a bit overweight. I started working on that a couple of years ago and have been able to improve my numbers and weight issue quite a bit through intermittent fasting and lowering the amount of carbs I eat. There is another discussion on that you might find helpful here:
--- Low-carb healthy fat living. Intermittent fasting. What’s your why?: https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

I'm glad to hear that you don't have any pain with your neuropathy symptoms. You might be interested in viewing the upcoming webinar on a holistic approach to diabetic neuropathy from the Foundation for Peripheral Neuropathy that I posted earlier here - https://connect.mayoclinic.org/comment/996895/.

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Replies to "Hi Celia @celia16, Thank you for the private message. I hope you don't mind but I..."

I appreciate that thoughtful and informative response, John. So glad your symptoms have improved.

My neurologist did an exam and ordered extensive blood tests, MRI and EMG. He was also evaluating me for fasciculations throughout my body and intermittent tingling in my hands during the night. And, smell and taste disorder. I had just been diagnosed with Post Covid Syndrome. So, it’s possible most of my symptoms are due to LC.

I’ve had good blood sugar control for most of my 24 years with type I. Some periods not as good as others, but never very high BG. At the time of my numbness, I had just brought my A1c down quite a bit and lost a lot of weight with healthy diet and exercise. I’ve lost even more since then and my A1C is in good range and my Endo is pleased. I have discussed the situation with my Endo.

I’d welcome any responses from any others who have had similar experiences. I will say that my numbness and tingling has improved. Will my tight diet, exercise and good time in range matter with this? Idk. I’ve seen 3 podiatrists with 2 who say it’s not neuropathy and one who says it is……lol.