Good news! The tumor shrunk from 9 cm to 6.4cm. and also shrinkage in the 3 lymph nodes. The doctor was encouraged and we were thrilled. I just finished 5th treatment- oxaliplatin, irinotecan and 5FU. My doc does not prescribe Leucavorin. I have had very little nausea and have a good appetite. My main side effect is the cold sensation with my hands and neuropathy. I have some tingling in my feet. I do have some intense jaw pain when I take a first bite that fades as I finish chewing. This is manageable pain at this point. My cheeks have a sensation that feels like I’ve had dental work/novacain that comes and goes. Anyone else get that?
The plan now is retest in 2 months, after 4 more treatments, and if still shrinking, switch to a chemo pill, Mon thru Friday. Has anyone else had this similar plan of treatment?

I also wanted to add that my tumor is in the tail of the pancreas and has spread out of the pancreas also. It seems like most everyone is saying their tumors are in the head?