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Chronic Pain members - Welcome, please introduce yourself

Posted by Kelsey Mohring @kelseydm, Apr 27, 2016

Welcome to the new Chronic Pain group.

I’m Kelsey and I’m the moderator of the group. I look forwarding to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.

Why not take a minute and introduce yourself.

Interested in more discussions like this? Go to the Chronic Pain Support Group.

jmb73 | @jmb73 | Dec 7, 2020
In reply to @frank1 "Hi, my name is Warren. I have dry eye disease, whose cause has yet to be..." + (show)
@frank1

Hi, my name is Warren. I have dry eye disease, whose cause has yet to be determined (after 6 years). I don't have pain in the sense of "hurt", but I do have it in the sense of irritation that is constant any time I have my eyes open. For that reason it seems I am more similar and sympathetic to people who have chronic pain than other types of disorders. People do not understand how it feels to constantly have sand in your eyes, or large foreign objects, and burning, and when one looks--there's nothing there! When I leave home or go outdoors, I find that wearing a snug-fitting pair of high-school chemistry lab goggles help keep my eyes from drying out so fast helps, but it is humiliating, and you should hear the comments some people make! I've said enough for now, but I am so glad to be part of this group. I hope I can help some of you. Thanks. Warren

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Hi Warren, I have dry eyes from Sjogren's Disease and my ophthmologist told me to use artificial tears to prevent damage to my eyes. I had been going to an optomotist and he said it was "the aging process". My PC sent me to an opthomologist and he said my right eye was so dry that I had scratches on my cornea and it was lucky I had come in as I could have gone blind in that eye. He had me using Systane non preservative every 15 minutes and Systane Ultra as needed. I am also on Restasis and Genteal gel for severe dry eye. Once my eyes were better, he put plugs in them. Dry eye is a dangerous disease. Please let me know how you are doing. Good luck

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jmb73 | @jmb73 | Dec 7, 2020
In reply to @terimel "Hi I’m Teri and I’m in severe pain almost daily . Can’t get pain pills anymore..." + (show)
@terimel

Hi I’m Teri and I’m in severe pain almost daily . Can’t get pain pills anymore , don’t want to take them daily but my God sometimes I really need the help !

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Hi Teri, Have you tried CBD? I use that and Gabapentin at night. My thumbs have collapsed and I use THC on them and wear a soft brace. I use Biofreeze on my feet. I feel badly for you as constant pain is awful- I am in it daily too. Please let me know if you try any of the above and if it helps you. Take care, Joan

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healthhopefreedom | @healthhopefreedom | Dec 9, 2020
In reply to @sunnyflower "I am so very sorry!! The liberals in our country are trying to install socialized medicine...." + (show)
@sunnyflower

I am so very sorry!! The liberals in our country are trying to install socialized medicine. I can't understand it. It is especially important for chronic pain patients who can't wait so long for care. My heart goes out big time!

I will pray for everything to work out for you and very quickly. Also for relief for you.

Many blessings, Sunnyflower

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I’m so scared about this. I’m paying so much money to finally get into Mayo Clinic and if we had government insurance, we would never be able to go here.

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2 replies
Faithwalker007 (Renee) | @faithwalker007 | Dec 9, 2020
In reply to @healthhopefreedom "I’m so scared about this. I’m paying so much money to finally get into Mayo Clinic..." + (show)
@healthhopefreedom

I’m so scared about this. I’m paying so much money to finally get into Mayo Clinic and if we had government insurance, we would never be able to go here.

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The Mayo Clinic is one of the best places to figure out what is happening when other providers have failed or have no clue.
They saved my brother’s life.

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ken82 | @ken82 | Dec 9, 2020

@healthhopefreedom I go to Mayo MN on Medicare and a Gap insurance ... I hardly ever had to pay anything extra.. Medicare is a government insurance. Look in to the facts about Medical Plans of Canada, UK, Denmark, Norway etc.. The public is much happier established by years of ongoing research because the uncertainty of huge medical bills..

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ess77 - Elizabeth | @ess77 | Dec 9, 2020

Hello, Ken82 and everyone. I'm 73 so thankfully have Medicare, which in combination with my healthcare supplement I pay for, pays for almost every single test, visit, whatever at Mayo. I'm thrilled with this coverage and of course, with Mayo. I feel like writing everyone I know to telll them how the Mayo system and doctors and staff have saved my life, have given me my life back. I had to pay $900, total, for a $7,000+ surgery to tighen my eyelids so I can see. The muscles were so loose, not with wrinkles!, just not able to hold up the lids so I could see out. It got so I was peeking through a little slit at times. Surgery was more than successful.....now have eyes wide open when I want to see. I've had so many expensive tests, yet haven't had to pay out of pocket. I have the best plan offered by United Health Care, so I pay more than my friends, but I have lots going on and need the coverage when I need it. It's worth every penny. Mayo has debunked several serious diagnoses, made new ones, found reasons for things no other doctors have been able to find. So, I suggest you take a big breath and trust the Mayo doctors and staff will answer questions and solve puzzles. Blessings to you on this journey.

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Erika | @erikas | Dec 9, 2020
In reply to @healthhopefreedom "I’m so scared about this. I’m paying so much money to finally get into Mayo Clinic..." + (show)
@healthhopefreedom

I’m so scared about this. I’m paying so much money to finally get into Mayo Clinic and if we had government insurance, we would never be able to go here.

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@healthhopefreedom Welcome to Mayo Clinic Connect, a place to give and get support.

You said that you are :"finally get into Mayo Clinic." May I ask what brings you to Mayo Clinic particularly?

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1 reply
sprinrosa64 | @sprinrosa64 | Dec 16, 2020
In reply to @bah1959 "My IntroductionHello, I am new to the group so need to introduce myself. I am a..." + (show)
@bah1959

<p>My Introduction</p><p>Hello, I am new to the group so need to introduce myself. I am a 61 yo female who has suffered from chronic pain for the last 3 years. I woke up one morning and was unable to bear weight on my right leg. I also had back pain at the time. I have had 3 hip replacements (two on my right and one on my left). My first thought was this is my hip. Ortho doctors have taken x rays and my hip looks fine. I was given an injection in my knee (since I was also having knee pain) Then went to a back doctor. I've had MULTIPLE steroid injections in my spine. From my L4 down to SI. The thought was that this was all sciatica pain. I've had PRP injections in my back and right hip. I've had 2 MRI's that show I've got disc protrusion on my LEFT side. So that doesn't seem to be the problem with my right side. I've done PT and acupuncture and NUCCA (which helps my back for sure!). I took myself to a neurosurgeon because I read about Brachioradial pruritis with cervical disc herniation which would explain the problems on my left side making my right side painful. He had not heard of this so didn't seem to care. I am now in the process of getting the Spinal Cord Stimulator trial started. It may be a bit extreme but at this point, I'm going to give it a shot. If I will be able to walk more than 30 ft without pain or be able to sleep on my right side, I'll be tickled pink. Or be able to sleep on my right I am rambling now but that's my story and I'm sticking to it! I had to retire early from my job as a result. Sounds nice, but I would really rather be working!! That's it! If anyone has any advice, I would certainly appreciate it!!</p>

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Bah1959 , this all sounds so familiar, I am 64 yr male , up until 2yrs ago I was very active then I had left knee replacement, well I have been in terrible pain since that surgery. Doctor said nothing was wrong EXCEPT MY PAIN, I gave up on him due to his lack of concern. I tried numerous nerve block shots, 2yrs of PT, had nerves cut around knee, then had knee revision and still stuck in pain. I have zero pain sitting or lying down but put weight on left leg and pain goes off the charts. This January I will be trying Stemwave PNS implant, trying to block the pain. Can’t wait for the day I can walk again. Stay strong & keep searching 🙏

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1 reply
magneticcenter | @magneticcenter | Dec 16, 2020
In reply to @bah1959 "My IntroductionHello, I am new to the group so need to introduce myself. I am a..." + (show)
@bah1959

<p>My Introduction</p><p>Hello, I am new to the group so need to introduce myself. I am a 61 yo female who has suffered from chronic pain for the last 3 years. I woke up one morning and was unable to bear weight on my right leg. I also had back pain at the time. I have had 3 hip replacements (two on my right and one on my left). My first thought was this is my hip. Ortho doctors have taken x rays and my hip looks fine. I was given an injection in my knee (since I was also having knee pain) Then went to a back doctor. I've had MULTIPLE steroid injections in my spine. From my L4 down to SI. The thought was that this was all sciatica pain. I've had PRP injections in my back and right hip. I've had 2 MRI's that show I've got disc protrusion on my LEFT side. So that doesn't seem to be the problem with my right side. I've done PT and acupuncture and NUCCA (which helps my back for sure!). I took myself to a neurosurgeon because I read about Brachioradial pruritis with cervical disc herniation which would explain the problems on my left side making my right side painful. He had not heard of this so didn't seem to care. I am now in the process of getting the Spinal Cord Stimulator trial started. It may be a bit extreme but at this point, I'm going to give it a shot. If I will be able to walk more than 30 ft without pain or be able to sleep on my right side, I'll be tickled pink. Or be able to sleep on my right I am rambling now but that's my story and I'm sticking to it! I had to retire early from my job as a result. Sounds nice, but I would really rather be working!! That's it! If anyone has any advice, I would certainly appreciate it!!</p>

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Thanks for your response good luck to you

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donaldjames1 | @donaldjames1 | Dec 16, 2020
In reply to @sprinrosa64 "Bah1959 , this all sounds so familiar, I am 64 yr male , up until 2yrs..." + (show)
@sprinrosa64

Bah1959 , this all sounds so familiar, I am 64 yr male , up until 2yrs ago I was very active then I had left knee replacement, well I have been in terrible pain since that surgery. Doctor said nothing was wrong EXCEPT MY PAIN, I gave up on him due to his lack of concern. I tried numerous nerve block shots, 2yrs of PT, had nerves cut around knee, then had knee revision and still stuck in pain. I have zero pain sitting or lying down but put weight on left leg and pain goes off the charts. This January I will be trying Stemwave PNS implant, trying to block the pain. Can’t wait for the day I can walk again. Stay strong & keep searching 🙏

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Hi, I've had 5 surgeries on neck and back. I have terrible pain lower right back, hip and leg. I am now starting to get pain on lower left back above buttock area. They have done the same thing to me as well with shots, blocks and tried spine stimulator with no help. I am still looking for help and asking for a doctor to take me in and do the research. Pro lemon is you get to a point and they say its something g else causing the pain. I am 63, no life, because of pain. Can not go or do anything without pain. I will keep looking. I pray for all who suffer and dont know why.
Gods Blessings

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