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Hepatic ductopenia and vanishing bile duct syndrome: Anyone?

Transplants | Last Active: Feb 1 5:42am | Replies (7)
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@hello1234

Hi @beracha
It's very nice to meet you. I am hopeful that a liver transplant patient will respond to your question about ductopenia shortly.
In the meantime, I have a question regarding your acute rejection after 25 years. Was there a change in your immune suppression meds or dosage that brought this on after 25 years? Are you currently taking Tacrolimis and Mycophenolate to treat the chronic rejection or what is the treatment plan?
Thank you so much for sharing your story.

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Replies to "Hi @beracha It's very nice to meet you. I am hopeful that a liver transplant patient..."
beracha | @beracha | Jan 14 4:40am

Hi. I take tacrolimus and have since 1990. I was in clinical trial for fk 506, now tacrolimus. Prednisone for first 3 months. All was great until 2015 when I experienced major stress, husband diagnosed with cancer and 3 weeks later my mother passed. My numbers were in normal range but for 25 yrs my numbers were same. They rose despite being in normal range. Ggt is. Got biopsy and diagnosed with rejection, ductopenia, and pancreatic cyst impinging on bile duct. Dr increased tacrolimus to high level for 3 years. I also tested positive for donor antigen which can cause issues. Because my transplant was 33 years ago I did not have the testing that current patients go through. Thank you for caring .

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beracha | @beracha | Jan 27 5:28am

Maybe ductopenia is better known as Vanishing Bile Duct syndrome. Ty for ur kind thoughts

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