← Return to Chronic Lymphocytic Leukaemia: New symptom of burning sensation

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@terlato

12 years ago I had very bad painful burning, sweating with nausea. I actually could not take the pain and profuse sweating then passed out this has happened at least 4 times and then was diagnosed in 2018 with CLL. No one could find the cause and recently the sweating and nausea has gotten worse and almost every day! So they are looking into Neuroendrocrin tumor somewhere in my body. Next week I have an endoscopic ultrasound to check my pancreas. They think this is where it is coming from. There are 2 modules on the head of the pancreas. Remember they tell you CLL won’t kill you something else will. Pray for all of us that are dealing with this disease and the mysteries that come with it!

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Replies to "12 years ago I had very bad painful burning, sweating with nausea. I actually could not..."

OMG! Yes, that is exactly what the oncologist said. "CLL won't kill you something else will." This is maddening! The constant itching, the pins and needles and not being able to sleep. I am seeing a Neurologist on 1/19/24. I will mention what you wrote to my doctors.

I hope you are able to get some relief. Thanks for your help and the information. Mark

I didn’t have the burning sensation until after my diagnosis. My hematologist said it didn’t have anything to do with the CLL. Just hope he is correct.

Hope everything works out for you.
Prayers going your way! 🙏
Take good care!