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Liver disease: Declining health

Transplants | Last Active: Jan 28 8:19pm | Replies (13)
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@msbearfan

I have been sober for 10 months. I have not had ANY alcohol during that time, My PETH tests have all came back negative for the transplant team, but this time it showed a 16! My primary prescribed my benzotatate for my cough, thinking it might be walking pnemonia. After 3 days of taking it, I ended up in the ER with a reaction. Turns out it contains alcohol, and shouldn't have been prescribed to me. It has been since Dec. 17 when I took it last - would that still show up on my test??? She then prescribed Mucinex which has no alcohol. Thoughts?

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John | @johnnoregon | Jan 13 7:08am

I hope your hospital is better than mine at this. I stopped drinking in '18. I had cirrhosis. Sober ever since. I was put on the list in Jan 19. I was removed from this list immediately with a positive EtG and PETH lab in Jan 20. They told me to have weekly PETH and EtGs, and maybe they'd let me back in at some point. Sepsis led by my liver, and jacked up by a heart attack put me in ER in Nov 20, in a coma. Flat-lined the chopper ride to my hospital, 190 miles away. Brought back, and out of the coma weeks later, and nursed back to life with 3 months in ICU. Then, they decided to put me back on the list. They did call me, and my transplant was on Sep 21.
Be calm with them, they don't know you. If you and your PCP are good, he needs to send the hospital a written letter for documentation for the explanation. It may help the PCP would vouch for your sobriety. Lots of luck, I'm pulling for you.

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